Showing posts with label Campaigning. Show all posts
Showing posts with label Campaigning. Show all posts

Monday, 21 October 2013

Guest Post - Elizabeth Bailey

Another blog post by one of my wonderful fellow ambassadors, and a real inspiration of mine, for you to enjoy today. Elizabeth is a wonderful lady, full of passion, intelligence and a real zest for life. I am honoured that she has allowed me to share some of her thoughts with you.

Elizabeth Bailey is Cancer Research UK’s Campaigns Ambassador for Luton South and on the Committee of CR UK Luton Relay for Life. Following a brush with breast cancer, she recently gave up a twenty-year Civil Service career and now combines being a postgraduate student with working in her local Public Health Team, and being a mum to two young daughters.  Elizabeth writes on cancer, and being a volunteer:

Over the past week, a family friend has been faced with the possibility that the breast cancer, for which she was successfully treated thirteen years ago, had returned, this time in her bones – secondaries, for which we know there is no cure.

The news stopped me in my tracks. Over time, I had come to the conclusion that the cancer for which I myself was treated three years ago was one of the best things that ever happened to me.  I’ll explain further why thought this, but for now, I’m having to consider that the life enhancing things which have come my way since then may have done so at some considerable cost – and only time will tell.

Early in 2010, I found myself sitting in a rain-drenched hospital car park howling with animal rage because I thought I would not see my little daughters grow up. But chemo, much surgery and radiotherapy have since been and gone.  It is now 2013, and the cancer, fingers crossed, is also gone.  But not the rage.  Cancer, in all its unpleasant incarnations, is now my chosen enemy. 

Everyone should have an enemy, don’t they say – it gives you purpose and direction, something to fight against. It did me. I now devote a good third of my time to helping dismantle this enemy, picking it apart bit by bit, with money, science, politics and the best efforts I can make to weaken it. I hope that even if it is still strong enough to take my friends, or even me, it will be a shadow by the time my daughters have to think about it. It’s in my sightline, and I’m proud to be called obsessive. One of my fellow CRUK Ambassadors, Jan Sheward, once vividly described to me her feeling of controlled rage about cancer.  Right on. I’m cool, calm, and armed with lots of facts and figures. Whoever wants to take me on, good luck.

Don’t misunderstand me - I respect my enemy, and it has given me things.  A whole host of new friends, for one.  Some really exciting, career-enhancing volunteering opportunities for another.  The courage to make a major change. Oh, and something to study for my PhD.  I really can’t complain about all of that. 
But there won’t be any gratitude. On Tuesday last week I went to the House of Commons with my fellow Ambassador Gower Tan, telling Peers and MPs why they should be playing their part in the further crowding-out of tobacco products by supporting an amendment to the Children and Families Bill.  This would enforce standardised cigarette packaging in shops where children are able to see those products. Yes, that’s right. Let’s not mess about here, the moral argument is won.  Peer-reviewed evidence proves that pack marketing attracts children. So we need to stop a toxic, addictive product, and the number one preventable cause of cancer, being dressed up in a completely misleading way. The game is over.  It’s now about taking timely action to save real people’s lives, and I will be making this very clear indeed.



We will win on this point.  It is not matter of if, but of when.  Funnily enough, until recently I used to rail against people describing cancer treatment as a ‘battle’, a ‘fight’ or a ‘war’. I had sad images of my old Dad, too weak to fight. But guess what - I’m getting over myself. If it helps some people to think like that, so be it.  Besides which, I think you can see I’m a bit of a street fighter myself - and I am not putting my coat back on just yet, not until I’m finished.

Friday, 11 October 2013

Remembering Bengu Shail - Greek, Turkish and Cypriot Bone Marrow Donors Needed

Bengu Shail was a fellow Cancer Campaigns Ambassador for Cancer Research UK. She sadly died at the age of thirty five earlier this year after a long batter with cancer. Unfortunately I didn’t get to know her very well but she has still impacted my life in a positive way and I wanted to use a blog post to pay tribute to her and help pass on the message she worked so hard to raise awareness of.

Bengu volunteered for several charities including Macmillan and CRUK. She also fundraised, campaigned and advocated. A lot of this was done from her hospital bed or whilst she was undergoing treatments. I am told she had a very positive outlook on life and was always very selfless.

Bengu was diagnosed with ALL (acute lymphoblastic leukaemia in September 2009. She went into remission after two years of intensive treatment and began working for Macmillan as a Case Studies Officer, helping other cancer patients. Sadly she was informed in October 2012 that the disease had returned and Bengu’s only hope was a bone marrow transplant.

Like my family, Bengu was from Cyprus (North Cyprus to be precise). Unfortunately Anthony Nolan were unable to find a matching donor on their UK register. Patients are more likely to find a match if they have a similar ethnic background and sadly the Greek, Turkish and Cypriot community are hugely underrepresented on the register in the UK.

Bengu herself once said “All of us want a cure for cancer. In my case, the cure is no in the hands of scientists, it is in the hands of my community – selfless people who are willing to spare a few hours of their time to give someone like me a chance to live.”

As a fellow Cypriot I think the best way for me to honour this incredible lady is to look into ways of becoming a bone marrow donor and encourage people from the same background as me to do the same. The Greek and Cypriot communities are famous for their hospitality and their sense of community. I for one have always been hugely proud to be a Greek Cypriot and I feel if we can be helping save each others lives by donating some bone marrow then we should be doing this!!! So if you’re one of my fellow Cypriots – please do check out Anthony Nolan and see how you can go about donating some bone marrow - you could save the life of a fellow Cypriot!
Bengu sounds like an incredible woman and I’m so sad that I didn’t get an opportunity to get to know her. I’m also very sad that this inspiring young lady was taken in the prime of her life. I hope others can be saved by her important message and her memory lives on with an increase in bone marrow donors from the Greek, Turkish and Cypriot communities.

To look into becoming a bone marrow donor please visit http://www.anthonynolan.org/


To donate in memory of Bengu please visit http://www.justgiving.com/remember/78465/Bengu%20-Shail

Tuesday, 30 July 2013

Plain Packaging: Writing to David Cameron

I’m so sorry for the recent lack of posts, once again life has become crazy and time for research has become non existent!

I just wanted to draw your attention to recent developments in the campaign we have been working on for well over a year now. Cancer Research UK has been asking to government to introduce plain, standardised packs for cigarettes. The campaign is aimed at young people and trying to discourage them from taking up smoking in the first place. IT IS NOT AIMED AT PEOPLE WHO ALREADY SMOKE.

Thousands of people every year are diagnosed with cancer because they have a smoking habit. Years of research has proven very clear links between cancer and smoking. One in every four cancer deaths in the UK is directly caused by smoking. a fifth of all cancer cases in the UK are also directly caused by smoking. Cancer Research research shows that smoking is the most important PREVENTABLE cause of cancer in the world.
More then four in five cases of Lung Cancer are caused by smoking. Lung Cancer has one of the lowest survival rates. it is the most common cause of cancer in the UK. Most of these cases are preventable if you give up smoking and allow your lungs to recover.

As well as Lung Cancer, smoking also increases your risk of over a dozen other cancers:
* Mouth
* Larynx (Voicebox)
* Pharynx (Upper Throat)
* Nose and Sinuses
* Oesophagus (Food Pipe)
* Liver
* Pancreas
* Stomach
* Kidney
* Bladder
* Cervix
* Bowel
* One type of Ovarian
* Some types of Leukaemia
* There is also evidence to suggest smoking can increase the risk of you developing Breast Cancer

There are at least 80 cancer causing substances in tobacco smoke. As you inhale the smoke these chemicals are released into your lungs and spread about your body. According to scientists; these chemicals can actually damage your DNA and mutate important genes, making your cells grow and multiply until they are out of control.

I  would like to make a very important point: I, and everyone else at CRUK, fight for EVERYONE suffering from cancer and EVERYONE who will suffer from cancer at some point in the future. No one deserves cancer; it is a horrific disease that changes the lives of sufferers and their loved ones. It is cruel and aggressive. It doesn't discriminate. This campaign is not aimed at making smokers feel like pariahs. It is not aimed at taking away your rights as a smoker. It is not aimed at making smokers lives more difficult. It’s not aimed at making smokers feel embarrassed, ashamed, guilty or pressurised to quit. This campaign is aimed at children and trying to get them to not take up smoking in the first place.

Cancer Research UK receives no government funding but has become the world’s leading charity dedicated to fighting cancer and saving lives through research. The charity is committed to reducing the harm caused by tobacco and has played a significant role in securing a ban on tobacco advertising, creating smoke free workplaces, removing cigarette vending machines and most recently changing the laws surrounding tobacco displays in retailers. We are now working hard to secure plain packaging and if the campaign is successful then the UK will become the first nation in Europe to introduce plain packaging.

Research has shown that eight out of ten smokers have started smoking by the age of nineteen. Most of these smokers will develop an addiction that will stay with them long into adulthood. Half of these long term smokers will die of a smoking related illness such as cancer. That is a huge amount of people suffering from an illness that could be prevented by not smoking in the first place.

The campaigns team at CRUK have been very thorough in their research and have providing their ambassadors with all the information needed. I have a list of arguments and rebuttals against plain packaging and I will write them here for you all to see:
“Plain Packaging will make packs easier to forge and will increase smuggling”
Tobacco products are already really easy to forge so covert markings are used to detect smuggled packs. These markings will remain on the plain packs.

“Plain Packaging will affect local shops”
Plain packaging is aimed at stopping young people from starting smoking so sales will decline slowly over time giving shops a chance to adjust. Plain packets will not have any detrimental effect on shopkeepers’ ability to find the requested pack’ peer-reviewed research has suggested that plain packs will actually speed up that process

“Cigarette prices will fall”
If there is any reduction in the price of cigarettes then taxes on cigarettes can be raised to compensate

“We can’t afford to lose tax from smokers”
Taxing of cigarettes contributes £10 billion to the treasury every year. HOWEVER the cost of smoking has been estimated to be £13.74 billion meaning the strain of smoking related illnesses cost more than the tax is brings in.
No figure can be put on the cost of human suffering caused by cancer

“Plain packaging is illegal as it infringes on trade mark rights”
Nobody is taking trademarks away by including plain packaging. International treaties have opt outs where public health in concerned so this is not an illegal move at all.

The important thing to remember about this campaign is that a lot of the campaigning has been done by volunteers like me. We are members of the public who genuinely believe in the work of Cancer Research UK. We are people who do this work in our spare time for no financial gains whatsoever. You have to really believe in something to be willing to dedicate hours and hours of your spare time to a cause, especially when you have a busy career, a family to take care of and an everyday life to lead. That dedication is a powerful tool. It means the work we do is genuinely done because we believe in what we are doing. We are people who have been affected by cancer and want to help prevent our experiences happening to others.

The other thing to remember is that the tobacco companies have spent a hell of a lot of money on opposing this campaign. Why would they do that if they were not worried that plain packaging would be a threat to their profits? Two million pounds was spent by JTI alone. Tobacco companies are not allowed to advertise their products anymore. Gone are the days where a Benson and Hedges advert would loom down on you from one of those massive billboards whilst you’re stuck in traffic. They have to rely on other means of enticing smokers. Packets are one of them. Cigarette packets have become increasingly glitzy in the past few years. Our campaign “Out of Sight, Out of Mind” has also proven tricky for tobacco companies because now cigarettes are hidden away in larger retailers.

Smoking is a lifestyle choice. One that I try to understand and respect. If you know of the dangers and choose to carry on smoking then that is entirely your prerogative and I wish you well. I sincerely hope you are in the very small minority that’s doe not get ill. But the fact remains that smoking is a dangerous habit and children should be encouraged to not take up smoking at all in the first place. The tobacco industry refers to children and young people as “pre smokers”, a fact I find rather disgusting. Most smokers I know would hate for their children to smoke.

If you believe plain packaging won’t put young people off smoking then think of your time at school. Imagine your mum put an ASDA own brand can of cola into your lunchbox instead of a Coca-Cola can, would you not have been slightly embarrassed by it? It’s the same logic with cigarettes – some are cooler then others. We all know how much image means when you are young. Smoking a certain brand of cigarettes will mean something. Taking the branding away will take that image away. No one will look cooler then anyone else if everyone has the same packet.

A comment I hear frequently is “if you’re doing this to tobacco, why not to alcohol?”. I have my own opinion on this. Certain types of Alcohol, in moderation, can have some health benefits whereas there are NO benefits to smoking. Absolutely none. It makes your hair, skin and clothes smell. It ages your skin. It discolours your teeth and nails. It damages your insides. It rots your teeth. It leads to a whole host of life threatening illnesses. Not to mention the damage it will do to your bank account.

I hope this blog post has provided you with all the information you need about plain packaging and why so many people are for such a historic move. Obviously, I understand that not everyone feels the same about the campaign but I hope this blog post explains my feelings on the subject.

The government recently announced that they do not intend to introduce plain, standardised cigarette packs which has been a huge disappointment to us, especially when you consider that over half of the detailed responses sent to Jeremy Hunt were in favour of the introduction of plain, standardised packs. We are asking David Cameron to let parliament decide on the issue with a free vote in the Commons. We need your help with this and I would ask that you follow the link and fill in your details to send a letter straight to the Prime Minister!



Please do feel free to use the comments box above to ask me any questions and thank you so much for supporting our campaign J

Friday, 7 June 2013

Guest Post: Rosa MacPherson - My Cancer Journey

Happy Friday!

Another one of my fabulous ambassadors has written a piece for this blog. I've featured the lovely Rosa on this blog before (http://pennysophia.blogspot.co.uk/2012/09/cancer-research-uk-ambassador-showcase.html). I hugely admire Rosa's spirit; she is incredibly brave and very proud to stand up for what she believes in. She is also a wonderful supportive person and very interesting too. She fully deserves her commendation at the Flame of Hope Awards, she is a wonderful asset to Cancer Research UK. I'm honoured she has allowed me to share this incredible piece of writing with you. Rosa has been through some horrific things and I think she is hugely inspirational. xxx

It was 2008, just a few months before I was diagnosed with uterine cancer. I walked up the steps into the chapel and took a deep breath. I didn’t feel ill but I felt far from well.

I looked at the face of my dead mother lying in her coffin. Strangely enough she looked more like herself than she had done in recent years. The Funeral Director had applied her lipstick and painted in her eyebrows and I had made sure she was wearing a pair of her favourite earrings: multi-coloured parrots. She had on her bright beads and her flowered shawl was draped across her shoulders.

Every part an elderly Polish peasant, once more restored to an image of herself she was happy with.  And which made me smile.  At last she seemed like herself.

She had not had an easy death: she starved slowly over a long period, unable to live following the death of my father four years earlier in 2004.  He’d endured amputations, gangrene and late onset diabetes following a lifetime of smoking about 60 a day. He died a heroic death in 2004; facing death squarely and cursing the fact he had ever smoked.

At that time he’d urged me to stop smoking but I didn’t. In fact when he died, my mother, then aged 83 took up smoking; half-heartedly I admit.

Six months following his death my husband George was diagnosed with lymphoma. An ex-smoker he faced chemotherapy with determination and courage and urged me to stop smoking -- but I didn’t.

He was dead within six months of my father and I kept right on smoking.

I developed pre-cancerous cells in my cervix and had treatment to remove them. I was warned that smoking increased my chances of the cells becoming abnormal again. But I kept on smoking.

I took a year out of life and escaped to Poland where I lived on a writer’s grant and tried to trace my parents’ family. I tried to make sense of my family history and myself. I think I felt a deep introspection growing inside me and I felt the loss of those I loved. I tried to fill it with opera and theatre and vodka and cigarettes. In Poland smoking was almost compulsory.

So I kept right on smoking. What was the point?  Anybody could drop dead at anytime. You ‘ve got to die of something, right?

Then in 2008, a full year after I had returned from Poland I decided to finally quit. My son had lost his father and his grandfather and watched as I was smoking my life away. At the same time I watched as my mother withdrew from life; day after day renewing her determination not to eat; me renewing my determination not to smoke. One wanting to die, the other determined to live.

And then that day she died and I looked at her painted smile and thought , ‘how strange that she looks more like herself now, finally.’’

And then I suddenly started to bleed. I felt the blood gush from me and in shock rushed home from the chapel. I decided it was just the trauma of seeing her like that, looking happy to be dead, which had caused the spontaneous period. That’s all it was.

I had been off cigarettes for almost two years. A few weeks after her funeral I walked up the Ochil Hills, a guest member of a group of ramblers enjoying an Indian summer.  The walk was tough.  I was less fit than I ‘d realized and was desperate to get home even though I was enjoying walking to the summit, then down into the ravines at Dollar ‘s Vale of Gloom. The village of Dollar derives its name from Doilleir, an Irish and Scots Gaelic word meaning dark and gloomy. It perfectly suits the place – wild, savage at times but splendid in its greenery and energy. Looking over the Vale I felt the deep desire to connect with the place; to get a feeling for the lives lived here, the dark romance of the land and thinking about the turbulent histories of the age-old inhabitants of nearby Castle Campbell.  I thought of my husband, Georgie, as he fought for every  last breath he had remaining; his desire to be outdoors , just one last time, before  his life was gone.

I wanted to take all of it in.  For him. For my dad. For my mum. All the friends I had lost through cancer.

And then I felt it – the gushing of blood once again.

I wondered if I was going to make it back without any of the other walkers noticing my discomfort and distress.

Back home I crawled up the stairs on my hands and knees and joked about how unfit I was.

I was on the verge of the menopause; that’s all it was.

A surprise opportunity to see Leonard Cohen in an open-air concert at Edinburgh Castle later that Autumn should have filled me with excitement but something stopped me. My friend Anne sensed it as I suddenly jumped up during his rendition of Hallelujah, one of his most memorable songs. I rushed to the temporary portaloo pouring with blood.

It was the excitement of seeing Mr. Cohen and hearing him sing so mournfully. That’s all it was.

That’s what I told the Doc when I finally went to see her. She listened to each of the three occasions when I had bled but when I told her I walked out of a Leonard Cohen concert she shook her head.

“We’re going to have to see about this ,’ she said.

Still no word of cancer.

I was checked for fibroids. Yes, I had them. ‘Best get you a scan,” Doc said. So I did.

“Best get a wee bite out of you,” she said.

So I did.

And still I refused to accept anything was wrong with me. Menopause. Stress. Anxiety. Depression. Loneliness. Anything. Not cancer.

Cancer.

It was cancer. A phone call on the evening of Friday December 5th 2008 changed my life.

I went out and got drunk. Then I went home and cried and cried, all of Saturday and Saturday night. On Sunday I sat on the couch, red-eyed and swollen. I listened to myself breathing, aware of my breath rising and falling, the oxygen filling my body with energy.

I was still alive. And I suddenly felt a calm descend on me and fill me with quietness and stillness.

I had no idea what was going to happen to me but I knew at that point I would survive this.

There is such a relief when you hit rock bottom.  With nowhere else to fall there is only a deep acceptance and a gentle relief.

I found I was very lucky: Stage 1 uterine cancer, spotted by my eagle-eyed and understanding Doc who, over the years, had taken the time to understand me; who knew that for me to walk out of a Leonard Cohen concert was not normal. It made her move, check me out.

Others are not so lucky.

I have a survivor’s guilt I think.  I lobby, I raise funds, I promote Cancer Research UK. I talk to doctors, scientists, fellow survivors but Georgie is still gone. Family and friends still gone:  Werner is gone. Donnie. Mary. Reiner. David. Ian. Margaret. Jean. And yet I have many survivors in my life too: Olive, Sheena, Rae, Alexandra, Karen. Linda. Me.

I wasn’t close to them all, but enough of them.

Cancer kills. Part of me thinks, well we need to die of something; why not cancer? But cancer is, in part, a manifestation of disharmony in nature, mutation in our bodies, our diets, our hearts, and our spirits. It has pervaded human life and set us challenges to fight back; find answers; change the way we live our lives, to encourage us to offer help, kindness and time to finance and support our fellow humans. Cancer is giving us the opportunity to feel wholly human.

Cancer changed my life. Took people I loved. Changed me. Made me strong. But I still feel I am not doing enough, for others, for the cause, for myself.

Four years on and I remain clear of cancer. I still drink too much,; I don’t walk enough and am overweight. I am not a saint but cancer has changed me. It’s made me realize my mortality. It has helped me reach out for my own humanity. And in doing that I found so much more.


Rosa Macpherson

Monday, 3 June 2013

Guest Post: Andy Millin – Why I Volunteer

Andy is one of my fellow Cancer Research UK Campaigns Ambassadors. He is always full of very interesting information and is very supportive of us all. He is a wonderful part of the group. He recently won an award at the annual Flame of Hope Awards, which is hugely well deserved and he attended the Queen’s garden party which is very glamorous and exciting!

Andy very kindly wrote a guest post for the blog as he knows I’ve been struggling to find the time to write recently. It’s a lovely piece of writing and really conveys what is means to be a volunteer for CRUK. I hope you enjoy it as much as I have. Thank you Andy!

I started volunteering for Cancer research back in 2000, when there was a radio shout out for help at the first Race for Life in Swindon. Living within walking distance of the park (it`s quicker to walk than drive) I thought I could go along and see what this new event was and help on the day. Having local knowledge of the park, I got involved with directing marshals to their designated points, and then taking control of a key crossover point on the course.

I remember the event as being pretty basic, compared to events today, but very enjoyable, meeting some great people, and enabling the women to enjoy their first ever race in Swindon. 2001 was pretty much the same, just helping out at the local event.

Things started to change in 2002 when I was asked if I could help at another event in Salisbury.
Since then I`ve been to many great events, Swindon, Salisbury, Newbury, Marlborough, Blenheim Palace, Dorney Lake, Bowood House, Longleat to name a few of the early ones.

For the last 5 years a small team of key volunteers have formed who follow an event manager to all of her events, between  8-10 per year, and also promotional work beforehand. It`s great to be part of such a team and the friendships that have developed over time are valued and exist outside of events.
This year, I will be helping to stage Swindon *2 , Cirencester, Gloucester, Cheltenham *2, Hereford and Worcester events…compared to other years, that’s a bit quiet, and I may need to find something else to do in the summer months

So, what do I do?  Well promotional work can be anything from looking after a stand, giving out promo information, to arranging and taking part in a Zumba flashmob to promote Race launch. Event days will see us on site, usually 5 am, often in a cold damp field, to set up and have everything ready for participants when they arrive. To date, I`ve done every job on event day, except the event managers role, so roles can vary dependant on what needs doing. The Race happens (that`s the easy bit), then we either have to clear down all the site, or freshen it up in the lunch break if there is a second event. There`s also local fundraising events, and last year, after about 4 months of saying I would, I joined the Cancer Research Campaign Ambassadors group.


Why do I give up this time? I`m lucky, I have no direct family who have been touched by Cancer, but I know many people who have. My greatest achievement….to see just one more sign on a participant that says ” I race for me..I survived” Even if it`s only one, my time has been well spent, but we are seeing a lot more survivors, so the work is paying off. Will I be back next year…YOU BET!!!!

Thursday, 14 February 2013

Smokefree Action Day




Happy Valentines Day one and all!

So it’s been six months since the consultation into introducing plain, standardised cigarette packets closed. The hard work is still continuing though and I wanted to use today’s Smokefree Action Day to remind you all of the key messages of our potentially historic campaign.

The whole point of this campaign is to persuade the government to introduced standardised packaging for cigarettes to stop the packets being used to entice children and young people into taking up smoking. IT IS NOT AIMED AT CURRENT SMOKERS AND MAKING THEM FEEL FORCED INTO GIVING UP SMOKING.

Over the years cigarette companies have been forced to give up their advertising etc…. which has meant they have started to focus on the packaging and using it as a way to attract young people. Half of all long term smokers die due to a smoking related illness, over 100,000 deaths per year in the UK are down to smoking. Tobacco companies need to replace the smokers they have lost and they target children and young people to do so. The key thing to remember is, if you become addicted to smoking as a child then it isn't a choice you've made as an adult, it is a childhood addiction.
 Australia introduced standard packs in December 2012 and so far retailers have found it easy to implement. There doesn't appear to be any evidence to suggest it has increased smuggling.

As most regular readers of this blog will know, the CRUK ambassador family went to Westminster in June 2012 to convince MP’s to support the introduction of standard cigarette packs. We also had a petition which over 79,000 members of the public signed to show their support. Over 200,000 members of the Great British Public have contacted the government to show they agree with standard packaging so far.

Years of research has proven very clear links between cancer and smoking. In fact smoking kills five times more people then road accidents, murder, suicide, HIV and overdoses in the UK. One in every four cancer deaths in the UK is directly caused by smoking. a fifth of all cancer cases in the UK are also directly caused by smoking. Cancer Research research shows that smoking is the most important PREVENTABLE cause of cancer in the world.

More then four in five cases of Lung Cancer are caused by smoking. Lung Cancer has one of the lowest survival rates. it is the most common cause of cancer in the UK. Most of these cases are preventable if you give up smoking and allow your lungs to recover.

As well as Lung Cancer, smoking also increases your risk of over a dozen other cancers:
* Mouth
* Larynx (Voicebox)
* Pharynx (Upper Throat)
* Nose and Sinuses
* Oesophagus (Food Pipe)
* Liver
* Pancreas
* Stomach
* Kidney
* Bladder
* Cervix
* Bowel
* One type of Ovarian
* Some types of Leukaemia
* There is also evidence to suggest smoking can increase the risk of you developing Breast Cancer

There are at least 80 cancer causing substances in tobacco smoke. As you inhale the smoke these chemicals are released into your lungs and spread about your body. According to scientists; these chemicals can actually damage your DNA and mutate important genes, making your cells grow and multiply until they are out of control.

There is huge support for this campaign and I do hope the government listens to the facts and the support. There is still work to be done. If you would like to support our campaign then please follow the link below and let your MP know you agree with the introduction of standard packs. In the six months since the consultation closed, over 78,000 more children have taken up smoking. That is a huge number of children and half of those will go on to develop an addiction and die from a smoking related illness. Don’t let it be a child you love, show your support for the campaign today and lets give children one less reason to take up smoking. It will be a huge step in the right direction.

Thursday, 31 January 2013

Macmillan - The Age Old Excuse Campaign


Today is my Yiayia's (Nan's) birthday. I am hugely lucky when it comes to grandparents; I had four that loved me more then anything. I have lost my paternal grandparents but I still have a very close relationship with my maternal grandparents. I would be heartbroken if anything happened to them.

The fabulous people are Macmillan Cancer Support are currently doing a brilliant campaign called the “Age Old Excuse”. They, and I, believe that there is no reason or excuse as to why older people with cancer are treated differently to the younger generations. The campaign wishes to make sure older cancer sufferers are treated based on their needs and requirements and not written off due to their age.
Macmillan are calling for several things (I am quoting the campaign directly here:)

*Older people to be offered treatment and care based on their fitness rather than their age
*Services to be made accessible to meet the needs of older people
*Staff to be given the time and training needed to provide the best possible care.

I have already pledged my support for this very important and worthwhile campaign. I would ask that you do the same. I lost my paternal grandparents to cancer and noticed they were treated in a completely different way to my twenty something aunts and uncles. This isn’t right and needs to be changed.

Please click the link and support this campaign, the older generation need to be protected and defended!!


xxx

Monday, 14 January 2013

A Tribute to Alice Pyne


I usually keep my emotions regarding cancer and death under control. After losing six relatives, I have become quite skilled at remaining calm whilst discussing the subject. I don’t cry very much about my relatives, although I do think about them everyday. Doing this blog and the charity work makes cancer seem less scary, although I do hate it with a passion.

However, on Saturday night, whilst scrolling through my Twitter feed, I found it very hard to control my emotions when reading about the tragic and untimely death of Alice Pyne. I never met Alice but her death really hit me hard and was a stark reminder of how cruel this damn disease is and how many amazing people it has taken from the world. I wanted to do a blog post in tribute to this amazing young girl who did so much good when suffering from something so terrible.

You may have already heard of Alice. She was diagnosed with Non-Hodgkins Lymphoma five years ago and sadly was told it was terminal. The incredibly brave young girl created her “bucket list” which was a list of all the things she wanted to do before she died. Now we live in a materialistic world and many of us dream of expensive holidays, expensive clothes and flashy cars. Not Alice, her list was humble and all about spending time doing amazing things with the people she loved. This was her list

* DONE - To go whale watching
* DONE - Visit Cadbury World
* DONE - To go to my school leaver’s prom
* DONE - To stay in the Chocolate room at Alton Towers
* DONE - To swim with sharks
* DONE ‘ish - To go to Kenya (got to go to Kent-ya)!
* DONE - To enter Mabel in a Labrador show
* DONE - Photo shoot with Milly, Clarissa, Sammie and Megs
* DONE - To have a private cinema party for me and my BFFs
* DONE - To design a Emma Bridgewater Mug to sell for charity
* DONE- To stay in a caravan
* DONE - To have a purple Apple iPad
* DONE - To meet Take That
* DONE - To have a nice picture taken with Mabel
* DONE - To have my hair done
* DONE - To have a back massage

Alice won a Pride of Britain award for her dedication to her campaign to get people to sign up to be bone marrow donors. FORTY THOUSAND people have signed up to the donor register directly because of Alice and her amazing efforts. That is an absolutely incredible legacy for a seventeen year old girl to leave behind. I’m hoping many more people will sign up in her memory and I have requested information from Anthony Nolan this morning to discover if I can donate myself because beautiful Alice’s story has touched me so much.

Alice leaves behind her devoted parents and her little sister Milly and my thoughts are with them at this horrific time. I hope they can take comfort from the fact that Alice made such a huge and significant mark on the world during her short life and that hopefully all these donors that have signed up because of her will help other children survive this horrific disease.

I think Alice was an amazing young girl, I can only hope to match her achievements in life. She was a role model to all and I sincerely hope she is at peace and free from pain now. If there is a heaven, I like to think Georgie has met her at the gates to show her around and look after her. I have an image in my head that all these beautiful and amazing people that have been stolen from us are all friends together somewhere safe and happy, awaiting the people they love.

RIP Alice – what a legacy you have left behind. xxx

For more information on Alice please visit her blog -  http://alicepyne.blogspot.co.uk/

For more information on Anthony Nolan and becoming a bone marrow donor – please visit http://www.anthonynolan.org/

xxx

Monday, 17 December 2012

Reviewing 2012: Part One – CRUK Volunteer Achievements



So 2012 is coming to a close and I thought I would do some blog posts to look back on the year.

Today’s post will focus on some of the achievements made by some of the 40,000 people who volunteered for Cancer Research UK this year:

Events and Volunteering
In 2012 over 11,000 volunteers supported 240 Race for Life across the country.  These events have raised over £50 million so far. 
Shine 2012 was supported by 480 volunteers in London and 384 volunteers in Manchester.   
This year a dedicated force of 794 volunteers supported our Cancer Research UK runners at third party events like the London Marathon and Great North Run.   


Fundraising and Volunteering
Volunteer fundraising groups have been busy again this year raising approximately £11 million through a myriad of different activities from Relay For Life to balls and last weekend, the famous Christmas Pudding Race in Covent Garden.     

On 26, 27 and 28 October 2012, we held a collection at 570 Tesco stores across the  country manned entirely by volunteers. This fundraising initiative was supported by 425 of our fantastic Groups and Committees, and a further 299 new volunteers who joined in to support the collection.  So far they’ve raised £210,261.26, and we’re still waiting for the final figures from 10 groups!  
 Ambassador Volunteers
The Cancer Campaigns Ambassadors have had a bumper year of success:
2012 saw of the introduction of covering up cigarette displays in larger retailers as a direct result of the “Out of Sight, Out of Mind Campaign”
The Answer is Plain campaign on the “Innovative Campaign of the Year” Award at the Public Affairs Award.
Over 100 Ambassadors took part in a hugely successful lobby of Parliament for The Answer is Plain campaign.
The Year of Radiotherapy campaign saw huge successes including David Cameron announcing a huge £15 million would be spent on Radiotherapy services.

Other Volunteers
Hundreds of volunteers have shared their stories for our brand campaign, Stand up to cancer, films for fundraising events, Little Stars campaign, Jubilee Beacon, Tesco charity of the year, national and regional press stories, ‘Give up clothes for good’, our Annual Review, Plain Packaging campaign, Francis Crick institute and all types of fundraising materials.

Many CRUK volunteers shared their stories to help promote the fantastic “Stand Up To Cancer” which has led to millions being raised for the charity so far


It’s been a hugely successful year for Cancer Research UK volunteers and I have had a great time taking part in some events and meeting some incredible people. Here’s hoping 2013 is even more successful!

If you are a CRUK Volunteer, please make sure you keep an eye out for #CRUKChatter on Twitter  - a great way to share ideas and meet other volunteers! Follow @CRUKWalton for more information!

xxx

Friday, 14 December 2012

A video of the CRUK Campaigns Ambassadors at Westminster

In June this year, the Cancer Campaigns Ambassadors desecended on Westminster to persuade the government to introduce plain packaging for cigarettes.

Here is a video to summarise the day.....see if you can spot me :)

http://www.youtube.com/watch?v=AxkSIeH1glg

Friday, 30 November 2012

Plain Packaging News

Morning all!!!

Tomorrow will see Australia become the first country in the world to introduce plain packaging of cigarettes.

Here are some of the latest news about this:






As most will know, we Cancer Campaigns Ambassadors have been working very hard alongside Cancer Research UK all year to try and persuade the government to introduce plain packaging in the UK.

The campaign is aimed at young people and trying to discourage them from taking up smoking in the first place. IT IS NOT AIMED AT PEOPLE WHO ALREADY SMOKE.

Please look out for plain packaging news over the next few days and it will be really interesting to see how it pans out in Austalia whilst we wait for the government's decision.

Just a few facts about plain packaging for anyone that everyone should know:


Thousands of people every year are diagnosed with cancer because they have a smoking habit. Years of research has proven very clear links between cancer and smoking. One in every four cancer deaths in the UK is directly caused by smoking. a fifth of all cancer cases in the UK are also directly caused by smoking. Cancer Research research shows that smoking is the most important PREVENTABLE cause of cancer in the world.

More then four in five cases of Lung Cancer are caused by smoking. Lung Cancer has one of the lowest survival rates. it is the most common cause of cancer in the UK. Most of these cases are preventable if you give up smoking and allow your lungs to recover.

As well as Lung Cancer, smoking also increases your risk of over a dozen other cancers:
* Mouth
* Larynx (Voicebox)
* Pharynx (Upper Throat)
* Nose and Sinuses
* Oesophagus (Food Pipe)
* Liver
* Pancreas
* Stomach
* Kidney
* Bladder
* Cervix
* Bowel
* One type of Ovarian
* Some types of Leukaemia
* There is also evidence to suggest smoking can increase the risk of you developing Breast Cancer

There are at least 80 cancer causing substances in tobacco smoke. As you inhale the smoke these chemicals are released into your lungs and spread about your body. According to scientists; these chemicals can actually damage your DNA and mutate important genes, making your cells grow and multiply until they are out of control.

I  would like to make a very important point: I, and everyone else at CRUK, fight for EVERYONE suffering from cancer and EVERYONE who will suffer from cancer at some point in the future. No one deserves cancer; it is a horrific disease that changes the lives of sufferers and their loved ones. It is cruel and aggressive. It doesn't discriminate. This campaign is not aimed at making smokers feel like pariahs. It is not aimed at taking away your rights as a smoker. It is not aimed at making smokers lives more difficult. It’s not aimed at making smokers feel embarrassed, ashamed, guilty or pressurised to quit. This campaign is aimed at children and trying to get them to not take up smoking in the first place.

Cancer Research UK receives no government funding but has become the world’s leading charity dedicated to fighting cancer and saving lives through research. The charity is committed to reducing the harm caused by tobacco and has played a significant role in securing a ban on tobacco advertising, creating smoke free workplaces, removing cigarette vending machines and most recently changing the laws surrounding tobacco displays in retailers. We are now working hard to secure plain packaging and if the campaign is successful then the UK will become the first nation in Europe to introduce plain packaging.

Research has shown that eight out of ten smokers have started smoking by the age of nineteen. Most of these smokers will develop an addiction that will stay with them long into adulthood. Half of these long term smokers will die of a smoking related illness such as cancer. That is a huge amount of people suffering from an illness that could be prevented by not smoking in the first place.

The campaigns team at CRUK have been very thorough in their research and have providing their ambassadors with all the information needed. I have a list of arguments and rebuttals against plain packaging and I will write them here for you all to see:
“Plain Packaging will make packs easier to forge and will increase smuggling”
Tobacco products are already really easy to forge so covert markings are used to detect smuggled packs. These markings will remain on the plain packs.

“Plain Packaging will affect local shops”
Plain packaging is aimed at stopping young people from starting smoking so sales will decline slowly over time giving shops a chance to adjust. Plain packets will not have any detrimental effect on shopkeepers’ ability to find the requested pack’ peer-reviewed research has suggested that plain packs will actually speed up that process

“Cigarette prices will fall”
If there is any reduction in the price of cigarettes then taxes on cigarettes can be raised to compensate

“We can’t afford to lose tax from smokers”
Taxing of cigarettes contributes £10 billion to the treasury every year. HOWEVER the cost of smoking has been estimated to be £13.74 billion meaning the strain of smoking related illnesses cost more than the tax is brings in.
No figure can be put on the cost of human suffering caused by cancer

“Plain packaging is illegal as it infringes on trade mark rights”
Nobody is taking trademarks away by including plain packaging. International treaties have opt outs where public health in concerned so this is not an illegal move at all.

The important thing to remember about this campaign is that a lot of the campaigning has been done by volunteers like me. We are members of the public who genuinely believe in the work of Cancer Research UK. We are people who do this work in our spare time for no financial gains whatsoever. You have to really believe in something to be willing to dedicate hours and hours of your spare time to a cause, especially when you have a busy career, a family to take care of and an everyday life to lead. That dedication is a powerful tool. It means the work we do is genuinely done because we believe in what we are doing. We are people who have been affected by cancer and want to help prevent our experiences happening to others.

The other thing to remember is that the tobacco companies have spent a hell of a lot of money on opposing this campaign. Why would they do that if they were not worried that plain packaging would be a threat to their profits? Two million pounds was spent by JTI alone. Tobacco companies are not allowed to advertise their products anymore. Gone are the days where a Benson and Hedges advert would loom down on you from one of those massive billboards whilst you’re stuck in traffic. They have to rely on other means of enticing smokers. Packets are one of them. Cigarette packets have become increasingly glitzy in the past few years. Our campaign “Out of Sight, Out of Mind” has also proven tricky for tobacco companies because now cigarettes are hidden away in larger retailers.

Smoking is a lifestyle choice. One that I try to understand and respect. If you know of the dangers and choose to carry on smoking then that is entirely your prerogative and I wish you well. I sincerely hope you are in the very small minority that’s doe not get ill. But the fact remains that smoking is a dangerous habit and children should be encouraged to not take up smoking at all in the first place. The tobacco industry refers to children and young people as “pre smokers”, a fact I find rather disgusting. Most smokers I know would hate for their children to smoke.

If you believe plain packaging won’t put young people off smoking then think of your time at school. Imagine your mum put an ASDA own brand can of cola into your lunchbox instead of a Coca-Cola can, would you not have been slightly embarrassed by it? It’s the same logic with cigarettes – some are cooler then others. We all know how much image means when you are young. Smoking a certain brand of cigarettes will mean something. Taking the branding away will take that image away. No one will look cooler then anyone else if everyone has the same packet.

A comment I hear frequently is “if you’re doing this to tobacco, why not to alcohol?”. I have my own opinion on this. Certain types of Alcohol, in moderation, can have some health benefits whereas there are NO benefits to smoking. Absolutely none. It makes your hair, skin and clothes smell. It ages your skin. It discolours your teeth and nails. It damages your insides. It rots your teeth. It leads to a whole host of life threatening illnesses. Not to mention the damage it will do to your bank account.

I hope this blog post has provided you with all the information you need about plain packaging and why so many people are for such a historic move. Obviously, I understand that not everyone feels the same about the campaign but I hope this blog post explains my feelings on the subject.

Good luck to Australia, I sincerely hope to read that introducing the plain packs does have an impact on the amount of young people taking up smoking. I have one preteen sister, two teenage sisters and one teenage brother as well as a preteen sister in law. I actively try to discourage them from smoking by educating them on the subject and setting an example for them. I do practice what I preach after all!!

For more information about plain packaging please do contact Cancer Research UK www.cancerresearchuk.org


xxx