Showing posts with label Charity. Show all posts
Showing posts with label Charity. Show all posts

Wednesday, 4 September 2013

The Eve Appeal - Raising Awareness of Gynae Cancers



Happy Wednesday one and all!
 
Fifty three women are diagnosed with a gynaecological cancer every day in the UK and twenty one die. The Eve Appeal was launched in 2005 to raise awareness of these cancers as well as raise funds for research into these cancer types. 

I wanted to focus on The Eve Appeal today and shine a light on all that they do.
Gynaecological Cancer is the group term for five cancer types that originate in the female reproductive system:
*Cervical Cancer – cancer of the cervix (neck of the womb). I have written extensively about this cancer type. It can affect women of all ages but is commonly found in women aged between thirty and forty five. It is a largely preventable cancer type as I like to mention as much as possible. Key symptoms of cervical cancer are:
-Any unusual bleeding from the vagina particularly after sex and after the menopause
-Persistent vaginal discharge that is blood stained or smells unpleasant.
The UK has a very successful screening process for cervical cancer involving smear tests and this is estimated to save around four thousand lives every year. The HPV vaccine will hopefully lead to even more prevented cases of cervical cancer in the future but at the moment it is hugely vital that you have your regular smear tests to pick up on any abnormal cells and treat them before they develop into cervical cancer.

*Ovarian Cancer – cancer of the ovaries accounts for more deaths in the UK then the other four gynaecological cancers put together. Around six thousand five hundred women are diagnosed with ovarian cancer in the UK every year and around four thousand two hundred die. The symptoms of ovarian cancer are hard to identify and it can be hard to diagnose the condition until it has spread to other parts of the body but the key early signs of ovarian cancer are:
-persistent pelvic and abdominal pain
-Increased abdominal size/persistent bloating
-Difficulty eating and feeling full quickly
-Needing to urinate more frequently
These symptoms are not just indicators for ovarian cancer but should always be checked out by a doctor to rule out anything serious such as ovarian cancer.

*Vaginal Cancer – cancer of the vagina is very rare and there are about two hundred and fifty cases seen in the UK every year. It is rarely found in ladies under the age of forty but most commonly found in women over the age of sixty. Changes to the vaginal lining called Vaginal Intrapithelial Neoplasia (VAIN) can give you a higher chance of developing vaginal cancer although the changes are not enough to make cells cancerous on their own. Cervical screening can sometimes pick up on these changes but this is not guaranteed as cervical cells are sampled during a smear test rather then vaginal cells. The HPV vaccine is able to provide some protection against vaginal cell changes. Symptoms of vaginal cancer or VAIN are are but can include:
-intermenstrual bleeding or bleeding after the menopause
-bleeding after sex
-vaginal discharge with a strong odour or that is blood stained
-pain during sex
-A lump or growth in the vagina
-A vaginal itch that won’t go away
20% of women diagnosed with vaginal cancer do not have any of the above symptoms and most of the above symptoms can be caused by something else so it is hugely vital that you visit your doctor for a check up if you feel something isn’t quite right.

Vulva Cancer – Vulva is the term used for the female external genital organs and vulval cancer is another rare cancer type with just over a thousand UK women diagnosed yearly. Around 80% of the women diagnosed are aged over sixty but the precancerous condition Vulval Intraepithelial Neoplasia (VIN) can be found in women aged between thirty to fifty. Signs of vulva cancer can include:
-a lasting itch
-pain or soreness
-thickened, raised, red, white or dark patches of skin
-a sore of growth on the skin
-burning sensation when you urinate.
-vaginal discharge or bleeding
-a mole that changes shape or colour
-swelling or a lump
As with most symptoms, these ones can indicate something other than cancer of the vulva but it is still vitally important to get them checked by a doctor should they arise.

Womb Cancer – uterine or endometrial cancer is the fourth most common cancer found in UK women and changes in our lifestyles mean it is on the increase. It is almost always curable as long as it is found in the early stages. The key signs of womb cancer are:
-vaginal bleeding after the menopause
-intermenstrual bleeding.
Any abnormal bleeding should be investigated by your GP immediately to rule out anything life threatening.

The Eve Appeal works hard to fund world class research into these cancer types at the Department of Women’s Cancers which is based at UCH in London. The research benefits women across the world and The Eve Appeal are consistently contributing about 15% of the total income used for research. Major breakthroughs are being achieved and the research is pioneering new ways to screen for gynaecological cancers as well as diagnose them early, prevent and treat them. This all leads to thousands of lives being saved every year.

Ladies I cannot stress enough how important it is to get to know what is normal for your body, especially your reproductive system. By learning what is normal for you, you will be able to notice when something is not quite right and by working that out and visiting a doctor to get the abnormality checked, cancer can be diagnosed quicker. The earlier cancer is found, the easier it is to treat. MAKE SURE YOU HAVE REGULAR SMEARS TOO!!!

For more information on gynaecological cancers and The Eve Appeal, please visit. www.eveappeal.org.uk

This post is dedicated to my Auntie/Nouna Gina who died of ovarian cancer in September 1994. She is missed every day.

xxx

Friday, 16 August 2013

Macmillan Campaigns: Sign the Petitions!



Happy Friday one and all! 

My blog has been full of information about Macmillan this week and I wanted to finish by highlighting a petition they are currently running within their campaigning team! 

Challenging the Caring Crisis:
As a family member that provided support to family members whilst they dealt with cancer, I assure you that cancer is an issue that affects the whole family. It is so important to make sure people don’t face their diagnosis and treatment alone. However, looking after someone with cancer is a tough thing to do and many carers are unaware of the support that is available for them.

There are around a million people in England who look after a loved one with cancer. Around 47% of those people feel as though they do not get enough support to enable them to do this well and only 5% are given a carers assessment by their local authority which then allows them access to this vital support.

The governments Care Bill allows Macmillan a chance to address these issues and make life easier for carers and in turn, those they look after. Macmillan need 5,000 people to sign their petition to support them in their quest to get the government to do all they can to tackle the issues with carers and their support.

Please click the link below to support this cause and sign the petition. Visit the Macmillan website for more information! 


http://campaigns.macmillan.org.uk/ea-action/action?ea.client.id=70&ea.campaign.id=20417&ea.url.id=163096&ea.campaigner.email=k7Tt0fBRvVGZ39e%2Fm3TMLzd%2B0UfVops6Tss8MZl8XxA=&ea_broadcast_target_id=0

Thursday, 15 August 2013

Macmillan Nurses



One thing that I consistently hear from cancer sufferers and loved ones is that the Macmillan nurses are angels. These very special people spend their time dealing with people in a horrific situation but they do so with compassion, dignity and care. That takes a very special person and I wanted to shine a light on these amazing people today.


You need to be a registered nurse with at least five years of experience (with two years cancer or palliative care experience) in order to become a Macmillan nurse. They also undergo highly specialised training in managing pain and other symptoms as well as how to provide psychological support.



Macmillan nurse are usually employed within the NHS but funded by Macmillan, usually for three years. After those three years they are normally funded by the NHS or a partner organisation. The nurses work within the NHS and aren’t usually involved with private healthcare. The nurses don’t usually deal with routine nursing tasks.



Types of Macmillan Nurses:

Some of the Macmillan nurses have certain areas that they specialise in:

Macmillan Chemotherapy Nurse – These nurses administer chemotherapy to patients and help them deal with the side effects.

Macmillan Breast Cancer Nurse – These nurses provide support for breast cancer patients from the time of the screening and diagnosis right through their treatment and beyond. They provide help for the women in making informed decisions as well as providing practical and emotional support for women coming to terms with a mastectomy.

Macmillan Paediatric Nurse – These nurses provide help and support for children with cancer as well as their loved ones. They provide this support at home and in hospital. They also aim to keep the child at home with their loved ones as much as possible.

Macmillan Lead Nurse – These nurses are senior nurse managers and help shape the future of cancer and palliative care services in their area.



How to Get a Macmillan Nurse:

If you want or need a Macmillan nurse then please speak to your GP  as you will need them to refer you.  You can also be referred by your hospital consultant, district nurse or a hospital ward sister. Please don’t hesitate to ask someone about Macmillan nurses and their availability in your area. Macmillan nurses are based across the UK but there are alternative services available in the event that there aren’t nurses available in your area.



Funding for Macmillan Nurses:

Macmillan nurses are funded 100% by donations to Macmillan Cancer Support. They provide a hugely vital service that many rely on during the toughest period of their lives. Please do donate what you can to Macmillan to keep this amazing service available to as many people as possible.



Please contact Macmillan for further information on their nurses.

Wednesday, 14 August 2013

Charity Showcase: Macmillan Cancer Support

I tend to focus a lot on Cancer Research UK because of my close connections to the charity but I wanted to use this post to shine a light on another incredible charity: Macmillan Cancer Support.

Whilst Cancer Research UK focuses on the research side of things, Macmillan is more about supporting people affected by cancer. Their website states: “Macmillan Cancer Support improves the lives of people affected by cancer. One in three of us will get cancer. We are all affected by cancer. We can all help. We are Macmillan.”


An Introduction to Macmillan and their Aims

Research into cancer means that more and more people are now surviving the disease. These people need practical, emotional and financial support. This is where Macmillan comes in.

“We are a Source of Support: Macmillan help with the things cancer patients need during their illness but they also help the loved ones who are trying to support someone through cancer. They guide people through the system and support them at every stage. They fund nurses, they build cancer centres and they fund specialist health professionals but they focus on the emotional and practical side of the disease – not just the medical side. Macmillan help with things like getting to and from the hospital, arranging carers and listening to people when they just need someone to talk to.

“We are a Force for Change”: Macmillan pride themselves on listening to those that have been affected by cancer and working with them to improve the system of cancer care. “People who live with cancer are experts by experience”. They use the knowledge gained by these patients to try and make a positive impact on the lives of people affected by cancer. This could be something as simple as getting a coffee machine for a hospital waiting area or it could be something like changing the law. They also fight discrimination and inequality within cancer care such as fighting to improve the benefits system for cancer patients and challenging unfair parking costs. Their website states: How much a person earns, where they live, their age, faith, gender, ethnicity, sexual orientation and whether they have a disability should not be a deciding factor on the type of services they can access and the quality of their experience.”

“We are Macmillan”: Macmillan aim to improve the lives of everyone affected by cancer. That is not a small task at all –they must like a challenge! They also want to inspire people to join in and try to help through donations and volunteering. Over two million people in the UK are living with cancer as we speak and Macmillan want to make sure all of them have help dealing with treatment issues, money worries and anything else they may need during their illness.


A History of Macmillan

Macmillan began in 1911 when Douglas Macmillan set up the “Society for the Prevention and Relief of Cancer” after seeing his father die of cancer. He wanted to be able to provide low cost information and advice for all people with cancer as well as provide voluntary nurses to look after patients in their own homes. Macmillan wanted to provide information on recognising the signs of cancer, preventing cancer and treating cancer to patients, medical professionals and members of the public.



A Macmillan Timeline:

1911 – Douglas Macmillan establishes “The Society for the Prevention and Relief of Cancer”

1924 – The charity changes its name to “National Society for Cancer Relief” and becomes a Benevolent Society. It aims to provide practical helps for those affected by cancer.

1930 – The first paid member of staff begins work for the charity.

1934 – Bath becomes the first town to have a local committee.

1969 – The charity makes its first contributions towards hospices and begins to support inpatients.

1975 – The first Macmillan nurses are funded and the first Macmillan Cancer Care Unit is built and fitted with equipment.

1978 – There are now ten Macmillan nurses available.

1980 - £2.5 million is spent expanding the availability of Macmillan nurses across the UK. An educational programme is launched to teach advanced pain control and cancer care to doctors, nurses and students across the UK.

1986 – The first Macmillan doctor is funded

1989 (my year of birth!!) – The charity changes its name to “Cancer Relief Macmillan Fund”

1991 – The Macmillan Nurses Appeal is launched with the aim of raising £20 million.

1993 (Georgie’s year of birth!) – There are now a THOUSAND Macmillan nurses

1994 – The charity pioneers “10 Minimum Standards of Care” as part of the UK wide breast cancer campaign.

1995 – The first directory of UK Breast Cancer Services is developed and distributed to GP’s.

1996 – The charity pioneers “6 Minimum Standards of Care” for gynaecological cancers.

1997 – The charity changes its name to “Macmillan Cancer Relief”. The information helpline launches and helps more than 11,000 people in its first year of operation.

1998 –The Macmillan National Institute of Education (MNIE) is opened with ten lecturers to provide training for specialist cancer care professionals.

1999 – “A Voice for Life” is launched to help people affected by cancer have their say. The charity also lobbies the Oxford English Dictionary and successfully gets them to change their incorrect definition of cancer.

2000 – There are now two thousand Macmillan nurses.

2001 – Macmillan merges with the charity Cancerlink, which formerly provided support for people affected by cancer.

2002 – The Macmillan Cancerline is launched and merges with the Macmillan Information Line as well as the Cancerlink information services.

2003 – A social care strategy is implemented to focus on supporting carers as well as providing financial support and advice.

2004 – The charity launches their biggest ever campaign asking for better financial help for people dealing with cancer. The Macmillan Benefits Line is launched.

2005 – There are now more then 3,500 Macmillan health professionals providing care and support.

2006 – The charity changes its name to Macmillan Cancer Support

2008 – The charity merges with Cancerbackup to provide high quality and expert information about cancer as well as make it available for everyone who needs it.

2009 – The integrated phone line is launched to allow people affected by cancer to just call one number and get all the help and support they need.



I hope this has been an informative post about this amazing charity. They do so many amazing things and have seen so much progression in a relatively short space of time when you think about it. Please do visit their website for more information.  http://www.macmillan.org.uk/Home.aspx