Hi Guys,
Just a quick post to ask that you please take a look at this blog www.smashsma.blogspot.com and support the parents of baby Estella. Estella would have been one next week but she sadly died in 2011 after battling Spinal muscular atrophy (SMA)
SMA is an incurable autosomal recessive disease which is caused by a genetic defect in the SMN1 gene. It is the most common genetic cause of infant death.
Just a quick post to ask that you please take a look at this blog www.smashsma.blogspot.com and support the parents of baby Estella. Estella would have been one next week but she sadly died in 2011 after battling Spinal muscular atrophy (SMA)
SMA is an incurable autosomal recessive disease which is caused by a genetic defect in the SMN1 gene. It is the most common genetic cause of infant death.
Estella's incredibly brave parents have launched a campaign to "Smash SMA" in Estella's honour. So far they have managed to get lots of public support and have met with the deputy prime minister who has since launched an investigation into the disease.
Please support this cause and get behind these brave bereaved parents. Estella was absolutely beautiful and it is incredibly sad that she didn't get to see her first birthday.
Follow Estella's parents on Twitter @Estellastar1
Thank you xxx
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