International Rare Disease Day 2012

Today is fifth annual International Rare Disease Day, an annual event aimed at raising awareness of many rare diseases. It is co-ordinated by EURODIS and organised by rare disease national alliances in twenty five European countries and more then forty countries world wide. The slogan for today is "Rare but strong together" This year's focus is solidarity.


My friend Dawn Green has been featured on my blog before. She suffers from a very rare type of cancer and has set up a charity to help others in her position. Pseudomyxoma Survivor is taking part in events for International Rare Disease Day and you can read more about them at http://www.pseudomyxomasurvivor.co.uk/


The George Pantziarka TP53 Trust is also part of the Rare Disease UK, a national alliance for people in the UK suffering from rare diseases. To read more about this please read my Uncle's blog http://www.anticancer.org.uk/2012/02/february-29th-is-rare-disease-day-2012.html


To find out more about Rare Disease UK and what they are doing to mark today, please visit http://www.raredisease.org.uk/news/rdd2012_2weeks.html


If you do suffer from a rare disease, please do look into today's events and how they can help you. My very best wishes to you all 


xxx