Tuesday, 2 December 2014
Giving Tuesday 2014
Friday, 28 November 2014
Justice for Michael Mina x
Wednesday, 26 November 2014
CRUK Campaigns Ambassador Showcase - Phil Wilson
What Made You Decide to Volunteer for CRUK?
I had done other volunteering and events for a variety of charities, this included music events, a quiz or two and the Virgin London Marathon.
My partner, the lovely Sarah, had been having treatment for breast cancer and that was my call to action.
Politically, activity started while I was still training for the London Marathon.
I had flagged up a charity bag fraud in Kent that, following further research, was found to be a national problem costing millions of pounds to genuine charities. After being passed around like a hot potato by Trading Standards, the Police and local licensing departments, I decided to pay a visit to my member of parliament. I am lucky to have a very active MP in the shape of Tracey Crouch. She was far from impressed when she heard about the run-around that I had experienced and she took the baton and ran with it. This culminated with an an adjournment debate in Westminster and a round table debate. I was asked to do radio and TV interviews on the back of these actions(one live on BBC1 lunchtime news!) Scary for most, but having a stammer sort of put the pressure on a tad!
This gave me the bug to help charities in a way that up until then I did not know existed.
I first joined Breakthrough Breast Cancer's CAN team. (Campaigns and Advocacy) I had success, again with the very active Tracey Crouch MP encouraging her to sign up to a couple of Breakthrough's campaigns.
The lovely Sarah started to work for CRUK and when I found out that they also kicked shins in Westminster, I applied to be an Ambassador. They must have been low on the ground because they took me on!!
What sort of things do you do for the charity?
It is surprising the number of people who think putting your hand in your pocket, though much needed, is the only way you can help charities. I have blown balloons up at events, banged in tent pegs, walked a Race for Life course as “The Last Man” making sure everyone has got round. On that particular event in Rochester, the last person was a lady in her late 70s with cancer, still doing her ”bit.” I kept her company until the last 100 metres and let her walk to the finish with her granddaughter to get all of the applause from the crowd..... yes I cried! (I do a lot of that these days!!)
A couple of years back I was a cycle marshal for Shine. That was an amazing experience (though very tiring) We cycled up and down chosen parts of the route keeping an eye out for any help required or were sent by radio to various parts of the course to assist with extra busy spots keeping walkers safe.
I am an active Ambassador and the role pays me back in spades as I get to meet all kinds of lovely people.
What are your favourite aspects of volunteering for the charity?
This might sound selfish, but personal development. Although as a professional drummer I am confident behind a drum kit, I was shy in crowds and would never speak in public because of my stammer. A major part of my development has been due to my experience at CRUK. I turned “I can't speak in public!” into “What can I do to speak in public for CRUK?” The overall improvement to my voice is a very long story but I now speak as part of my job (presenting drum circles and rhythm events for education and business team building) I have joined the Professional Speaker Association and I have started writing a book about Presenting. None of this would happen without my involvement with CRUK and Breakthrough.
My MP invited me to a gathering of medical experts and charities to meet with David Cameron. When the table was opened for questions my hand was the first up. That would never have happened!
I meet such inspirational people, cleaver people, nice and funny people, plus guess what?? Never once have I met anyone complaining about anything. Not their illness, their job or anything. Perhaps that's a lesson we all need to look at!
I would strongly recommend anyone with any talent (even a talent they think they don't have) to have a go at volunteering. You will help change lives....maybe even your own!
If you're interested in working alongside someone as brilliant as Phil then please click on the link and apply to join our Ambo family!! http://www.cancerresearchuk.org/campaign-for-us
Thank you for allowing me to interview you Phil, I feel very privileged to work alongside you!
Wednesday, 12 November 2014
New Campaign - Cross Cancer Out
The UK is currently building up to the General Election which will take place in May 2015. We get to decide who will be representing the constituencies we live in and representing our views in Parliament as well as ultimately deciding who will lead our country for the next few years. If you're over the age of eighteen and registered to vote then you have a chance to make your voice heard and exercise your right to vote.
Real progress is being made in the fight against cancer and CRUK's political actions is helping to accelerate this progress. Cancer is a political issue as well as a emotional one and it is something that matters to all of us. Survival rates have doubled over the last forty years but there is still lots more work to be done and this campaign is focusing on what the charity would like election candidates to focus on:
*Continued Support for Campaigns to Raise Public Awareness of the Signs and Symptoms of Cancer
Campaigns such as Be Clear on Cancer help raise awareness and encourage people to seek help when they feel they can identify some key signs and symptoms of cancer within their bodies. During the BCOC lung cancer campaign, 700 more people were diagnosed with lung cancer and 300 more received potentially life saving treatment compared to the same time period the year before. CRUK want the government to continue to support such campaigns in the UK.
*A Commitment to Increase Participation in the National Bowel Cancer Screening Programme
Bowel cancer is the fourth most common cancer in the UK. As with most cancers, patients diagnosed at an earlier stage are more likely to survive, with four out of five patients with the earliest stage of the disease surviving at least five years after diagnosis. However fewer then one in ten patients are diagnosed at the earliest stage. CRUK would like the government to ask local areas to increase the number of people participating in bowel screening by at least 10% as well as providing quality information on the risks and benefits of the screening process so people can make an informed decision on whether to participate.
*Strengthen the System and Processes that Support Cancer Diagnosis
Health is a devolved issue but people living in Scotland, Wales and Northern Ireland can still get involved in the campaign as your next MP's will also need to be encouraged to keep cancer high on the political agenda. They will also have the power to advocate for improved health throughout the UK. Successful initiatives in England will have an impact on the other three nations so it is important MP's are aware of what is going on.
*Equal Access to Innovative Radiotherapy, Surgery and Effective Cancer Drugs, including Drugs Targeted to Patients' Tumours.
-Radiotherapy is a cost-effective and cutting edge cure for cancer. Treatments are becoming more sophisticated over time and CRUK believe it is important that patients receive the very latest treatments as soon as they have been proven effective and become available. Research suggests radiotherapy contributes to four in ten cases where the cancer is cured. My Ambo family helped secure over £23million from the government to help increase patient access to radiotherapy so that now over 6,000 more patients have access to a targeted radiotherapy with less side effects. CRUK now want to government to commit to a long term strategy to make innovative radiotherapy treatments available to all those who would benefit. This strategy should include details on how out dated radiotherapy machines will be replaced by newer equipment with more advanced techniques as well as how the workforce will be resourced,
-Surgery is essential when it comes to managing and treating cancer. It contributes to half of all cases were cancer is cured. Evidence suggests that older patients are less likely to have surgery for their cancer and CRUK believes surgery should be offered to ALL cancer patients where appropriate regardless of age. We want the government to commit to increase access to surgery for the older population.
-Cancer drugs are an important part in many patients treatment. Appropriate access to effective and innovative drugs is vital and we need the government to find a long term solution to make these drugs available to the patients who need them. NICE, the NHS and drug companies will be required to work together to make this happen. Personalised medicine is already revolutionising cancer treatment as it makes sure patients get the best drugs for their condition, and hopefully avoid side effects from the drugs specialists can predict will not work for them, We will hopefully develop many more targeted treatments in the future and we need to make sure the government and NHS develop a commissioning policy so patients can be offered the appropriate diagnostic tests.
Tuesday, 11 November 2014
Lung Cancer Awareness Month 2014
The Lungs:
Sunday, 2 November 2014
Movember
Saturday, 1 November 2014
For the Love of George
Monday, 27 October 2014
Zoe MacGechan's Guide to Running
The running itself completely took over and changed my life. I committed whole-heartedly. You do not need to do this as much as I did, but I was immensely daunted by the task and wanted to do it properly. Runners say you must respect the distance and I heeded this. I respected and feared it. I took it very seriously because it scared me and I wanted to do as much right to give myself the best chance as possible. I had to run 26.2 miles. My brain couldn't even compute that when I signed up. I was going to be running for around 4 hours! I've never done one single thing for that period of time in my life: I even need breaks from sleep! When I created a Facebook invite for the day of the race and realised I'd be starting at 10am and not finishing until around 2pm, the scale of my task hit me. I would not only be running for four hours, I would not be eating for four hours too. I don't think I've ever been conscious and gone without a meal for that long in my entire life. Now I was really scared.
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Tuesday, 14 October 2014
CRUK Cancer Campaigns Ambassador Showcase - Jules Rattray
I talk about being inspired by my fellow CRUK Ambassadors a lot on this blog and I'm going to talk about it even more today! Without a doubt the best part of being a volunteer is getting to know the others - working alongside them is one of my favourite things in the world. I am definitely the least amazing of the group by far!
Today I'm going to showcase one of the most inspirational people I've had the pleasure of meeting - Jules Rattray. It's a special day for her today as it's exactly 4 years since her last chemo treatment. Jules is friendly, intelligent and incredibly brave. She is a very gentle soul and also highly intelligent - so much so that I don't hold the fact that she's a Man Utd fan against get :) She is a wonderful asset to CRUK and I'm truly honoured that she has allowed me to share her story with you guys today. Jules, I find you incredible and wish you many many many happy and healthy years ahead of you filled with lots of love, fun and success!
What made you decide to volunteer for CRUK?
After having finished my chemotherapy treatment and finding I was in remission I really felt I wanted to do something to help people in the future. I Knew about CRUK because of finding info from them during initial diagnosis. However after being so unwell and having to stay in so much to keep away from infection, I had become quite anxious about being out and about, so I just volunteered in my local CRUK shop for 4 hours twice a week to get out. While I was there I learnt more about what the charity does and when I came across the Ambassador role, I realised it was my opportunity to make my experience into a positive one and contribute to a future free from cancer.
*What sort of things do you do for the charity?
I have done some fundraising in the past at various sporting events, I have also had some newspaper articles to advertise race for life done. But most of my effort for CRUK goes into campaigning as an Ambassador for the charity. I lobby my MP on the policy issues that matter most for CRUK. I have been to two parliamentary lobby days, the first was for the standardized packs campaign and the second as to introduce MPs to our 2015 general election calls. Most recently I spoke to politicians and scientists at the Beatson Institution for Cancer Research about my personal experience with cancer and why I decided to become an ambassador.
*What are your favourite aspects of volunteering for the charity?
I find it incredibly rewarding because without Cancer Research UK I wouldn’t be alive today, I owe them so much so it has been great to be able to contribute even in a small way to the work that they do. I also find that everyone I have come into contact with at CRUK are incredibly kind and caring people who really are dedicated to a future where al cancers are cured.
*Do you have any future volunteering plans?
I plan to continue the ambassador role indefinitely, I also volunteer as a Samaritan once a week.
*What advice would you give anyone considering volunteering for CRUK?
I would tell them the ambassador role can be very flexible and with many of the actions you can give as much or as little time to them. You will feel a great sense of achievement at the parliamentary days when the whole team gets together. And you will meet many very inspiring people along the way, all working towards the same goal. You can get involved in other ways to, there is plenty fundraising to be done and volunteering in one of the CRUK shops is a great way to get out socialising and meeting new people all whilst helping to beat cancer!
Jules made a very important speech recently and I wanted to share 2 paragraphs of it for you as I found them really powerful;
I think every ambassador has a defining moment in their journey through cancer, I thought I might share mine with you. It was during a phone call I had with my Dad. I was particularly anxious about the mid-way scan I was about to have. I said to my Dad, ‘well what if it’s not working? What if I am still dying?’ To which he replied without even needing to think ‘I won’t let you die, you are my daughter and I will never let that happen to you’. I told him ok and that I loved him and then hung up the phone. I told him ok, because that is what he needed to hear. I couldn’t tell him what I really felt because it would break his heart – It was that day, that I realised no matter how much he loved me, my Dad couldn’t protect me anymore, I was completely alone.
I am standing here today as an ambassador for Cancer Research UK because I don’t want to find myself, years down the line and all I can say to a loved one is I won’t let that happen to you. I am standing here now because I do love my Family and friends very dearly but I recognise that no amount of Love alone can stop cancer. We have to be proactive, the only way that we can protect our loved ones from cancer is through Research and clinical trials, through raising awareness and through Early Diagnosis.
It’s a long road ahead, but if we work together, Wewill beat cancer sooner.
Jules has her very own blog which is a really interesting read so please do click the link and have a look at her writing. http://newbeginning3today.blogspot.co.uk/?m=1
If you're interested in becoming part of the CRUK volunteering family and working alongside people like Jules please take a look at the link to find a role that will suit you! http://www.cancerresearchuk.org/support-us/volunteer
xxx