Tuesday, 2 December 2014

Giving Tuesday 2014

Hey guys,

Today is Giving Tuesday, a day where we put the excess of Christmas to one side and try to give back to our communities, so I thought I would summarise a few ways people could get involved.  Please take 5 minutes out of your day to do spare anything you can to ensure someone receives a special gift this Christmas, and ensure you end up on Santa's nice list!

Here are a few ideas of what you can do to take part today:

Cancer Research UK - of course I have to mention the charity close to my heart! Text GIVE1 to 70200 to donate £3 to help beat cancer sooner.

CLIC Sargent - My friend Luke Claxton is fundraising for this brilliant charity with his Target 50K project. There are so many ways to take part. You can click the link and donate or you can find out other ways to get involved at https://www.justgiving.com/target50k/

The George Pantziarka TP53 Trust - My beautiful cousin, Georgie, has sadly passed but our family is working tirelessly in his memory. You can find out more at www.tp53.co.uk

Local Food Banks - Many families are living below the poverty line so if you are able to add a few items to your weekly shop and donate them to your local food bank you could provide a family with some much needed food during the festive season.

Crisis - €21.62 could provide a homeless person a homeless person with a place at a shelter, including hot food, health checks and some support to enable them to hopefully make a fresh and positive start in the new year. You can find out more at http://community.crisis.org.uk/facebook

There are so many ways to do something selfless and amazing today. Christmas is a time for family, love, food etc.... but it should also be a time where we are grateful for what we have and try to help those who are sadly less fortunate then us. Please let me know if you do anything to mark the day!

As well as donating to CRUK and Luke's Target 50k I shall be using today to donate to Crisis to help some of the homeless and I am planning a trip to deliver Christmas presents at my local Children's Hospital. 

xxx

Friday, 28 November 2014

Justice for Michael Mina x

I love my family very much, I think that's obvious to all that know me. But I also have close friends, whom I treat like family, and they mean the absolute world to me too. Almost 2 weeks ago someone I consider my aunt lost her nephew/godson in a horrific way. 

Michael Mina was 22 years old and was stabbed in the neck by a 17 year old who had more then 50 criminal offences to his name. The attack was savage and has left Michael's family suffering the agony of his loss and knowing it could have been prevented if this criminal had been in a youth detention centre. 

The Mina family are lovely lovely people. I've grown up with them and can honestly say you'd be hard pressed to find more decent and loving people. The fact that the church was absolutely packed during Michael's funeral is proof that he and his family are loved by many. 

Somehow Michael's family have found the strength within themselves to use their loss and their grief to try and ensure this tragedy doesn't happen to anyone else. Amongst other things they have a petition online to ask the Cyprus government to take action and put things in place for young criminals in this country. It's a hugely important campaign that needs your support. 

Please have click the link, read the information and sign the petition to support this amazing family on their quest for justice for Michael. http://www.avaaz.org/en/petition/The_Cyprus_Government_President_of_Cyprus_Creation_of_adequate_juvenile_correctional_facilities/?tdPpKib

The Christofi family are fully behind you guys, so much love for you all xxx


Wednesday, 26 November 2014

CRUK Campaigns Ambassador Showcase - Phil Wilson

Another Ambassador showcase today, and one I have been wanting to do for a while! I first met Phil at a volunteers conference two years ago. He was friendly, interesting and very clearly passionate about CRUK and the subject of what we can do to beat cancer in general. Phil is one of life's "doers", always updating the rest of us on his antics, which include recently meeting the Prime Minister, and he is one of the very few people I know on very good first name terms with his MP. I hope you find Phil as inspiring as I do when reading this.


What Made You Decide to Volunteer for CRUK?
I had done other volunteering and events for a variety of charities, this included music events, a quiz or two and the Virgin London Marathon.
My partner, the lovely Sarah, had been having treatment for breast cancer  and that was my call to action.
Politically, activity started while I was still training for the London Marathon.
I had flagged up a charity bag fraud in Kent that, following further research, was found to be a national problem costing millions of pounds to genuine charities. After being passed around like a hot potato by Trading Standards, the Police and local licensing departments, I decided to pay a visit to my member of parliament. I am lucky to have a very active MP in the shape of Tracey Crouch. She was far from impressed when she heard about the run-around that I had experienced and she took the baton and ran with it. This culminated with an an adjournment debate in Westminster and a round table debate. I was asked to do radio and TV interviews on the back of these actions(one live on BBC1 lunchtime news!) Scary for most, but having a stammer sort of put the pressure on a tad!
This gave me the bug to help charities in a way that up until then I did not know existed.
I first joined Breakthrough Breast Cancer's CAN team. (Campaigns and Advocacy) I had success, again with the very active Tracey Crouch MP encouraging her to sign up to a couple of Breakthrough's campaigns.
The lovely Sarah started to work for CRUK and when I found out that they also kicked shins in Westminster, I applied to be an Ambassador. They must have been low on the ground because they took me on!!

What sort of things do you do for the charity?
It is surprising the number of people who think putting your hand in your pocket, though much needed, is the only way you can help charities. I have blown balloons up at events, banged in tent pegs, walked a Race for Life course as “The Last Man” making sure everyone has got round. On that particular event in Rochester, the last person was a lady in her late 70s with cancer, still doing her ”bit.”  I kept her company until the last 100 metres and let her walk to the finish with her granddaughter to get all of the applause from the crowd..... yes I cried! (I do a lot of that these days!!)
A couple of years back I was a cycle marshal for Shine. That was an amazing experience (though very tiring) We cycled up and down chosen parts of the route keeping an eye out for any help required or were sent by radio to various parts of the course to assist with extra busy spots keeping walkers safe.
I am an active Ambassador and the role pays me back in spades as I get to meet all kinds of lovely people.

What are your favourite aspects of volunteering for the charity?
This might sound selfish, but personal development. Although as a professional drummer I am confident behind a drum kit, I was shy in crowds and would never speak in public because of my stammer. A major part of my development has been due to my experience at CRUK. I turned “I can't speak in public!” into “What can I do to speak in public for CRUK?” The overall improvement to my voice is a very long story but I now speak as part of my job (presenting drum circles and rhythm events for education and business team building) I have joined the Professional Speaker Association and I have started writing a book about Presenting. None of this would happen without my involvement with CRUK and Breakthrough.
My MP invited me to a gathering of medical experts and charities to meet with David Cameron. When the table was opened for questions my hand was the first up. That would never have happened!
I meet such inspirational people, cleaver people, nice and funny people, plus guess what?? Never once have I met anyone complaining about anything. Not their illness, their job or anything. Perhaps that's a lesson we all need to look at!
I would strongly recommend anyone with any talent (even a talent they think they don't have) to have a go at volunteering. You will help change lives....maybe even your own!


If you're interested in working alongside someone as brilliant as Phil then please click on the link and apply to join our Ambo family!! http://www.cancerresearchuk.org/campaign-for-us

Thank you for allowing me to interview you Phil, I feel very privileged to work alongside you!




Wednesday, 12 November 2014

New Campaign - Cross Cancer Out

When it comes to my voluntary work there is nothing I love more then working as a team with my Ambo family. Our latest campaign has started and today I'm going to outline it here in the blog and hopefully get you guys involved in some way!

The UK is currently building up to the General Election which will take place in May 2015. We get to decide who will be representing the constituencies we live in and representing our views in Parliament as well as ultimately deciding who will lead our country for the next few years. If you're over the age of eighteen and registered to vote then you have a chance to make your voice heard and exercise your right to vote.

Real progress is being made in the fight against cancer and CRUK's political actions is helping to accelerate this progress. Cancer is a political issue as well as a emotional one and it is something that matters to all of us. Survival rates have doubled over the last forty years but there is still lots more work to be done and this campaign is focusing on what the charity would like election candidates to focus on:

*Continued Support for Campaigns to Raise Public Awareness of the Signs and Symptoms of Cancer
Campaigns such as Be Clear on Cancer help raise awareness and encourage people to seek help when they feel they can identify some key signs and symptoms of cancer within their bodies. During the BCOC lung cancer campaign, 700 more people were diagnosed with lung cancer and 300 more received potentially life saving treatment compared to the same time period the year before. CRUK want the government to continue to support such campaigns in the UK.


*A Commitment to Increase Participation in the National Bowel Cancer Screening Programme
Bowel cancer is the fourth most common cancer in the UK. As with most cancers, patients diagnosed at an earlier stage are more likely to survive, with four out of five patients with the earliest stage of the disease surviving at least five years after diagnosis. However fewer then one in ten patients are diagnosed at the earliest stage. CRUK would like the government to ask local areas to increase the number of people participating in bowel screening by at least 10% as well as providing quality information on the risks and benefits of the screening process so people can make an informed decision on whether to participate.


*Strengthen the System and Processes that Support Cancer Diagnosis
Health is a devolved issue but people living in Scotland, Wales and Northern Ireland can still get involved in the campaign as your next MP's will also need to be encouraged to keep cancer high on the political agenda. They will also have the power to advocate for improved health throughout the UK. Successful initiatives in England will have an impact on the other three nations so it is important MP's are aware of what is going on.

*Equal Access to Innovative Radiotherapy, Surgery and Effective Cancer Drugs, including Drugs Targeted to Patients' Tumours.
-Radiotherapy is a cost-effective and cutting edge cure for cancer. Treatments are becoming more sophisticated over time and CRUK believe it is important that patients receive the very latest treatments as soon as they have been proven effective and become available. Research suggests radiotherapy contributes to four in ten cases where the cancer is cured. My Ambo family helped secure over £23million from the government to help increase patient access to radiotherapy so that now over 6,000 more patients have access to a targeted radiotherapy with less side effects. CRUK now want to government to commit to a long term strategy to make innovative radiotherapy treatments available to all those who would benefit. This strategy should include details on how out dated radiotherapy machines will be replaced by newer equipment with more advanced techniques as well as how the workforce will be resourced,
-Surgery is essential when it comes to managing and treating cancer. It contributes to half of all cases were cancer is cured. Evidence suggests that older patients are less likely to have surgery for their cancer and CRUK believes surgery should be offered to ALL cancer patients where appropriate regardless of age. We want the government to commit to increase access to surgery for the older population.
-Cancer drugs are an important part in many patients treatment. Appropriate access to effective and innovative drugs is vital and we need the government to find a long term solution to make these drugs available to the patients who need them. NICE, the NHS and drug companies will be required to work together to make this happen. Personalised medicine is already revolutionising cancer treatment as it makes sure patients get the best drugs for their condition, and hopefully avoid side effects from the drugs specialists can predict will not work for them, We will hopefully develop many more targeted treatments in the future and we need to make sure the government and NHS develop a commissioning policy so patients can be offered the appropriate diagnostic tests.


Lizzy Allen, one of the lovely ladies looking after my Ambo family, has written a blog about the campaign which you can read here http://scienceblog.cancerresearchuk.org/2014/10/24/its-time-to-cross-cancer-out-our-general-election-campaign/ 
You can take part in the campaign by taking two minutes to click the link and allow CRUK to email your election candidates and ask them to support the campaign. http://e-activist.com/ea-action/action?ea.client.id=149&ea.campaign.id=32425&ea.tracking.id=140b280a
Campaigns are what we Ambassadors do best and I'm hugely excited about this one. The build up to the general election is really important and I encourage as many people as possible to get involved and help decide who will be in charge of our country next. Thank you very much in advance for clicking the link!!
For more information please visit http://www.cancerresearchuk.org/support-us/campaign-for-us/cross-cancer-out
xxx


Tuesday, 11 November 2014

Lung Cancer Awareness Month 2014

November is lung cancer awareness month. Lung cancer and smoking is something frequently discussed on my blog so this post will be really brief and just go over the key facts!

The Lungs:
The lungs are part of the respiratory system and their main job is to bring oxygen into the body and pass it into the bloodstream.
The Respiratory System:
* The trachea (windpipe) divides up into two airways with one going into each lung. These are called the left main bronchus and the right main bronchus,
* These pipes are divided into smaller tubes inside the lung – two on the left and three of the right. These smaller tubes are known as the secondary bronchi
-          The secondary bronchi are then divided again into even smaller tubes called bronchioles
-          At the end of the bronchioles there are tiny air sacs called alveoli in which oxygen is passed into the bloodstream and passed around the body. At the same time carbon dioxide comes into the alveoli from the bloodstream ready to be breathed out.

Causes of Lung Cancer and Risk Factors:
Cancer of the lung is the second most common type in the UK. It is one of the few cancers that has very clear causes.
SMOKING causes 9/10 cases of lung cancer. I’ve done posts about smoking before so I won’t go into detail but the majority of lung cancer patients are smokers or former smokers. AS SOON AS YOU STOP SMOKING YOUR RISK OF LUNG CANCER STARTS TO GO DOWN SO IT IS ALWAYS WORTH GIVING UP
Being exposed to radon gas is can also increase your risk of lung cancer as well as exposure to certain other chemicals. Air pollution, past cancer treatment and a family history of lung cancer can also increase your risk.
Symptoms of Lung Cancer:
The most common symptoms are:
Having a persistant cough
Being short of breath
A change in a  cough you have had for a long while
Coughing up phlegm with traces of blood
Pain when breathing in
Pain when coughing
Loss of appetite
Losing weight
 
Less common symptoms are:
A hoarse voice
Difficulty swallowing
A swollen face or neck
 
Treating Lung Cancer:
There are a number of factors to be considered before your specialist will decide on the right treatment plan for you. These include the type of lung cancer you have, the grade and stage of it, your general health and the position of the cancer in your lung.
Chemotherapy and Radiotherapy are common treatments for lung cancer. Surgery may also be an option depending on where your cancer is in your lung.




It saddens to me to know that so many cases of lung cancer can be prevented if people didn’t smoke. The fact that lung cancer is the second most common cancer type in the UK and that 9/10 of lung cancer patients are smokers is the reason behind all the tobacco control campaigns Cancer Research UK do. We can lower the numbers significantly if people take advice offered to them and quit smoking. Going cold turkey will not be anywhere near as painful as lung cancer.
 
If you are looking to quit then here is a handy timeline for you to see how your body will repair the damage smoking has caused over time
 
Timeline:
20 Minutes After Your Last Cigarette – the temperate of your hands and feet has returned to normal and so has your blood pressure and your pulse rate.

8 Hours After Your Last Cigarette – The nicotine levels in your bloodstream has reduced by 93.25% which is just 6.25% of your normal daily level at the peak of smoking.

12 Hours After Your Last Cigarette – Your carbon monoxide levels have dropped to normal whilst your blood oxygen levels have increased to normal.

24 Hours After Your Last Cigarette – Your anxiety level will have peaked in its intensity, making you crave a cigarette – this will return to a normal level within two weeks.

48 Hours After Your Last Cigarette – Your nerve endings which have been damaged by smoking will be starting to regrow. Your sense of smell and taste will begin to return to a normal level. Your anger and irritability levels will have peaked, making you very agitated.

72 Hours After Your Last CigaretteYou will be entirely 100% nicotine free!!!! On top of that you will have passed over 90% of all the chemicals nicotine breaks down into (nicotine metabolites) via your urine. Breathing is becoming easier for you and your lungs are being to increase in function. Your lung bronchial tubes which lead to your alveoli (air sacs) are beginning to relax as your body recovers. On the downside, your chemical withdrawal symptoms have peaked in their intensity and you will feel restless amongst other things.

5 to 8 Days After Your Last Cigarette – You will encounter an average of three cue induced craving episodes per day at this time. These shouldn't last longer then a few minutes.

10 Days After Your Last Cigarette – You will encounter less then two cue induced craving episodes lasting no longer then three minutes.

10 Days to Two Weeks After Your Last Cigarette – You should be at the point where your addiction isn’t controlling you anymore. The blood circulation in your teeth and gums will become similar to that of a non smoker.

2 to 4 Weeks After Your Last Cigarette – You should no longer be feeling any anger, anxiety, impatience, insomnia, depression, restlessness or finding it difficult to concentrate due to your withdrawal from cigarettes. If you do then you should make an appointment to have these symptoms assessed by a doctor.

2 Weeks to 3 Months After Your Last Cigarette – Your risk of a heart attack is starting to drop and your lung function is beginning to improve.

3 Weeks to 3 Months After Your Last Cigarette – Your circulation should be improving significantly. Walking will become easier. If you had a chronic cough as a smoker then it should be almost all gone (see a doctor if it hasn’t by this point).

8 Weeks After Your Last Cigarette – Your Insulin resistance will have normalised and you may have gained a little weight (the average weight gain at this point is 2.7kg).

1 to 9 Months After Your Last Cigarette – Cilia will have regrown in your lungs which means your lungs should have an increased ability to handle mucus, keep themselves clean and reduce infections. Your body’s overall energy level will have increased. Any shortness of breath, fatigue and sinus congestion related to smoking will have decreased significantly.

1 Year After Your Last Cigarette – Your heightened risk of coronary heart disease, heart attacks and stokes will have decreased to less then half of what it was when you smoked.

5 Years After Your Last Cigarette – Your risk of a subarachnoid hemorrhage has declined to 59% of what it was when you smoked. Female ex smokers will now find their risk of developing diabetes has decreased to that of a non smoker.

5 to 15 Years After Your Last Cigarette – Your risk of having a stroke has decreased to that of a non smoker.

10 Years After Your Last Cigarette – Your risk of developing lung cancer has decreased to 30-50% of a smoker. Risk of dying from lung cancer has decreased by about half. Your risk of developing cancer of the mouth, pancreas, throat and oesophagus has declined significantly. Risk of developing diabetes has decreased to a similar level for a non smoker for both male and female former smokers.

13 Years After Your Last Cigarette – The risk of losing teeth related to your smoking will have declined to the same level as someone who has never smoked.

15 Years After Your Last Cigarette – Your risk of developing coronary heart disease is now the same as a person who have never smoked as is your risk of developing cancer of the pancreas.

20 Years After Your Last Cigarette – The risk of a female former smoker dying from a smoking related illness will have reduced to the same level as someone who has never smoked.

 
If you are attempting to quit smoking or have managed to do so then I salute you. I would highly recommend keeping an eye on how much money you are saving by not smoking as that is also a great incentive to keep going when the craving are driving you crazy. Let me know how you get on and I wish you luck!

For more information on lung cancer please visit www.cancerresearchuk.org.uk
For information about quitting, please contact your local NHS Stop Smoking service
xxx 

Sunday, 2 November 2014

Movember

Happy November one and all!!

November = Movember and its time to raise awareness of male centric cancers.

So boys make sure you read all about the cancers that target your male parts. Be clued up and use it as a legitimate reason to be checking yourselves over.

Prostate Cancer:
The Prostate:
The prostate is a gland found only in males. It surrounds the urethra, the tube that carries urine from the bladder to the penis. It also carries semen. The prostate is responsible for creating the fluid part of semen. The prostate needs testosterone (the male sex hormone) to grow and function.

Symptoms of Prostate Cancer:
Having to rush to the toilet to pass urine
Difficulty in passing urine
Passing more urine than normal, especially at night
Pain when passing urine
Blood in urine or semen (very rare)

These symptoms are the same for prostate cancer and an enlarged prostate so it is important to go to the GP as soon as they appear. The symptoms are usually caused because the growth is pressing on the urethra and is blocking the flow of urine. It is important to remember that early prostate cancer does not usually cause any symptoms because the growth is too small to affect the flow of urine.  Prostate cancer usually grows quite slowly, especially in older gentleman. They may only suffer mild symptoms and they may occur over a number of years.

Causes and Risks:
Prostate cancer is the most common cancer for UK men (not counting non melanoma). There are some risk factors:
* Age is the most significant of these risk factors. Prostate cancer is quite rare in men younger than fifty – in fact more than half of all prostate cancer cases are found in men aged seventy plus.
* Having a family history of breast cancer or prostate cancer will also heighten your risk of developing this type of cancer
* If you are of African ancestry then your risk is also higher as this type of cancer is more common in men of black or mixed race descent then white or Asian men

Screening:
The aim of screening for prostate cancer is to diagnose the disease in the early stages when it is usually easier to treat and most likely to be curable. At the moment a national screening test is not available but research is being carried out and trials are taking place all the time.

Diagnosing Prostate Cancer
If your GP suspects prostate cancer then they will:
* Examine your prostate by placing a gloved finger into your back passage
* Get you to have a blood test to check your PSA levels (PSA = Prostate Specific Antigen)

This is not as painful or as embarrassing as it sounds. GP’s do this all the time and although having a finger inserted into your bottom may sound horrific, I am told by reliable sources that is really isn’t as bad as it sounds. Please don’t let the fear or embarrassment stop you getting this test if you feel you have a problem with your prostate – it could save your life.

With PSA levels, it is usually the higher the level, the more likely you are to have cancer. However, don’t be too alarmed by this fact – there could be another reason, for example an enlarged prostate or an infection. In fact, two out of three men with a raised PSA level do not have prostate cancer. It is possible for a man to have prostate cancer but not a high PSA level – this is where the gloved finger comes in handy.

Treating Prostate Cancer:
This is where my post will get complicated so I will try and keep it as clear and concise as possible!

Prostate cancer is divided up into stages. These stages will inform the doctor of how developed the cancer is and this information will help them decide on the best treatment plan for the patient in question. The stages are numbered 1-4 and your doctor will talk to you about your “TNM” which stands for Tumour, Nodes and Metastases. Basically this means they will discuss the size of the tumour, whether is has spread to any nearby lymph nodes and whether it has spread (metastasised) to anywhere else in your body.

Prostate cancer tends to spread to your bones rather than other organs. It is possible for it to metastasise even when the original prostate tumour is very small. This means early diagnosis is key to treating it and controlling it.

There are several factors doctors consider before deciding a treatment plan. These factors are:
* The stage of the cancer
* The grade of the cells (how they look under a microscope)
* Your Gleason score
* Your PSA levels
* Your age
* Your general health

Once these factors have been considered, your treatment options will become clearer and your doctor will discuss them with you. Please ask questions and make sure you feel comfortable with the treatment plan you are offered. Don’t be afraid to get a second opinion.

If the cancer is low risk and is localised to the prostate area only, then active monitoring is likely to be your treatment option. This means the cancer will be monitored and the doctors will wait to see if it develops. If it does start to develop then surgery may be an option and the prostate gland could be removed. Radiotherapy is also an option at this stage.

If the cancer is classed as an intermediate risk but is localised to the prostate area then surgery to remove the prostate gland may be an option. Radiotherapy may also be considered.

A high risk, localised tumour will usually be treated with surgery and external radiotherapy.

If the cancer has broken through the capsule that surround the prostate gland then this is known as locally advanced prostate cancer. This will usually involve surgery or radiotherapy which will be combined with hormone treatments.

There are many types of surgery for prostate cancer; it is worth taking a look at www.cancerresearchuk.org to read about them.

Testicular Cancer:
The Testicles:
The testicles are part of the male reproductive system and are two oval shaped organs that hang just below the penis in a skin pouch called the scrotum. From puberty, sperm is produced in the testicles as is the hormone testosterone.

Testicular Cancer Symptoms:
The most common symptom of testicular cancer is a lump or a swelling. PLEASE DON’T PANIC BECAUSE MOST TESTICULAR LUMPS ARE NOT CANCEROUS. A cancerous lump can vary in size but is usually not painful although some men will find they have a dull ache in the affected area or in their lower abdomen. The scrotum may feel heavy.

GUYS CHECK YOUR BALLS!

As I may have mentioned several hundred times before, cancer is easier to treat if it is caught early. Check your testicles often (once a month) and get to know how they feel normally. This will make it easier for you to notice and lumps and bumps that may appear. Get your partner to check them too so you have a second opinion if you need one.

The best time to check your testicles is after a warm bath because your scrotum skin will be relaxed. Here is a rough guide on how to check your testicles:
-         *  Hold your scrotum in the palms of your hands and use all your fingers and thumbs.
-          * Gently feel one testicle at a time.
-          * A noticeable increase in size or weight can be a sign that something is not right.
-          * You should be able to feel a soft tube at the top and back of the testicle. This is normal
-          * The actual testicle should be smooth with no lumps or swelling.

IF YOU DO FIND A LUMP OR HAVE CONCERN ABOUT YOUR TESTICLES, PLEASE MAKE AN APPOINTMENT WITH YOUR GP ASAP. IT MAY BE SLIGHTLY UNCOMFORTABLE FOR YOU BUT DETECTING ANYTHING WRONG AT AN EARLY STAGE COULD SAVE YOUR LIFE AND YOUR TESTICLE!!!

Risks and Causes of Testicular Cancer:
Cancer of the testicles is quite rare in the UK and not much is known about what causes it. However, there are several factors that can increase a man’s risk of developing the disease:
-          * If a young boy has an undescended testicle than it should be corrected by the time they turn eleven to avoid an increase risk of testicular cancer.
-          * Some men have Carcinoma in situ (CIS) which is basically abnormal but not cancerous cells in the testicle. These cells will have to be monitored to ensure they do not develop into cancer and are caught early if they do.
-         *  If you have a brother that has suffered from testicular cancer then research suggests this could increase your risk of developing it too. Around 20% (1 in 5) testicular cancer cases are caused by faulty inherited genes.
-          * Ethnicity is also a factor. In the USA, white men are 5 times more likely to be diagnosed with testicular cancer then black men. In the UK, testicular cancer is also much more common in white men. As yet, not much is known about why this is.

Treatment for Testicular Cancer
There are many factors to consider before your specialist will decide on a treatment plan for you. They will consider the stage, grade and position of the cancer as well as your general health and whether or not the cancer has spread to other parts of the body.

Treatment by Stage:
Stage One – If you have very early testicular cancer then the likelihood is that you will have surgery to remove the whole of the affected testicle. This is called an orchidectomy. You may also be offered Radiotherapy or Chemotherapy.
Stage Two - The treatment of stage two testicular cancers depends on the size of the affected lymph nodes.  It may be treated with chemotherapy or radiotherapy. Surgery to remove the lymph nodes may also be an option.
Stage Three – After surgery, stage three testicular cancers are always treated with chemotherapy to shrink the lymph nodes. If they don’t shrink back to a normal size then they may be removed or treated with radiotherapy.

So guys, I’m actually encouraging you to regularly have a good old feel of your testicles! It’s hugely important to know your own body and what is normal for you so abnormalities can be detected ASAP should they arise. This could save your life! Please do go to your GP if you have any worries about anything mentioned in my blog post today.

For more information about testicular cancer please visit www.cancerresearchuk.org or visit http://www.orchid-cancer.org.uk/ which is a specialist charity for male cancers.
If you have testicular cancer and would like to preserve your sperm by freezing it – please speak to your specialist or visit http://www.londonwomensclinic.com/

One of my friends, and most favourite people, Stuart Pilcher, is a testicular cancer survivor and you can read about him here: http://pennysophia.blogspot.co.uk/2011/12/stuart-pilcher-survivor-story.html

xxx

Saturday, 1 November 2014

For the Love of George


It's no secret that my cousin, Georgie, is one of my favourite people in the world (I say is rather then was because no one will ever replace him) and that he is the driving force behind the work I do with cancer charities. My aunt has written a very accurate and really heartfelt book about my wonderful cousin which will hopefully help people who didn't meet him be able to understand just how incredible he was and that he was so much more then a young boy with cancer.

I'll admit it took me a few hours to find the courage to read the book when my aunt sent me the link and it downloaded onto my kindle but I'm so glad I read it. It's a tough read but my aunt has managed to really capture everything that made Georgie who he was as well as how much he meant to all of us. After reading it I felt like I had gone back in time and lost him all over again, I'm struggling to believe it's been three and a half years since he left us. 

Georgie had a tough journey, his story doesn't have a happy ending, especially for those of us that struggle without him. But with the fantastic work my aunt and uncle are doing in his memory I hope his lasting legacy will be to protect others from going through what he went through. 

The other thing the book reminded me was just how amazing my family is. We've been to hell and back several times but we are a strong unit and there is no doubt in my mind that we will continue to support each other through thick and thin. The pride I feel for my family is sacred and even when I'm miles away, I hope they know the love I have for them all. 

Some of the proceeds from the book will be going to The George Pantziarka TP53 Trust (www.tp53.co.uk)

For kindle you can buy the book at this link http://www.amazon.co.uk/exec/obidos/ASIN/B00OYWOUYM/454

For hard copy http://www.amazon.co.uk/exec/obidos/ASIN/1502741482/454





Monday, 27 October 2014

Zoe MacGechan's Guide to Running

I'm really really honoured to be able to share this brilliant guest post with you today. Zoe MacGechan is one of the newer members of our Ambo family but I'm excited to get to know her better. The first thing I've realised about her is that she is a keen runner, and a pretty brilliant one too! I'm really grateful she was able to write this for the blog and I hope it motivates you as much as it does me! Thanks Zoe! xxx



Fellow CRUK ambassador, Penny Christophe, has invited me to write a guest blog on running and fundraising. I am by no means an expert on either, although I do like to kid myself I am and I am very keen to share my experiences and tips in the vain hope it helps inspire someone to put on their trainers and do the same. So, here goes. 

I've aways been a greedy girl, so running has been my go-to for when I've packed on a few pounds, but I didn't consider myself a runner or even have a regular running habit until about 10 years ago. Even then, it was still a casual attempt to burn off my booze belly. Then, in 2007 I lost my mother to cancer. My life was turned upside down, I had to leave my teaching job in Japan and go back to my childhood home, which I was not especially fond of, to care for her and then be guardian to my younger brother and oversee the drawn-out sale of her house. I was unhappy and didn't have a lot to distract me from it until a friend and I signed up for Race for Life in Cambridge. 

I hate being bad at things and I guess this is key to my success in both running and fundraising. I didn't want to let myself or the charity down. People mistake this for competitiveness, but the only person I hope to beat is me. Suddenly having a positive purpose in my life gave me focus and running was a great way to leave the misery behind, if only for half an hour. That first year, the fundraising took care of itself. Or, more accurately, my very supportive friends and family took care of it for me. I sent out a few emails and people handed over their cash. People who knew Mum, people who wanted to look out for me, people who'd had their own lives damaged by cancer, they all gave very generously. 

And so began a bit of a habit. I signed up for another Race for Life, this time in hilly Hampstead, so I trained harder. Despite the tough course, my friend, Rachel, and I beat our previous times - coming 11th and 12th. Then, we signed up for a 10k in Finsbury Park and somehow got 3rd and 5th. For each race I've done, I have felt like I have had to do more to earn people's money. I have told them this too. The people you are asking for support from are your friends, they like you, they want to help, but they only have so much money to give and sponsored events, particularly running for charity, have exploded in recent years. Everyone is clawing at their cash; you can't just expect people to part with that without a little coaxing and convincing. 

In those first few years of running, I think I did get by on a lot of love. I trained hard and people do respect that: I was always chasing a 'decent' time or a PB and that does involve training, which will win people over. You don't have to be lightening fast, you just need to try. You'll probably want to anyway: when you tell absolutely everyone you've ever met that you're doing something, there's a bit of pressure to perform, but when you fundraise for a charity like Cancer Research UK the cause exists separate from you. Some will give for you and some will give because of the charity. It is a great charity and I've met few people who would argue against ending cancer (I met one, but he was very drunk and being a bit sixth form!). 

My fundraising and training went up a notch when I was finally convinced to enter the London Marathon. When people know you run, they will ask you if you're doing this next. They will ask you this quite a bit, it turns out. I always said hell no. Once I'd conquered a 10k, I did progress, without any other impetus than my own weird desire, to a half marathon (yes, 13.1 miles, half of a full marathon, which is 26.2 miles - if you get into running you will find yourself clarifying these points quite a bit too) and so everyone asked me if I'd do a full. I just couldn't see it being something I was physically capable of in terms of time, commitment or capability, until my running buddy, Rachel, who'd done so many races with me  signed up and completed with grace and what appeared to be ease in 2013. 

She trained, but she still enjoyed her life. She didn't disappear into some weird running bubble where people could not reach her unless they were in wicking fabric and trainers. More importantly, when we cheered her on at mile 23 she ran past and didn't look like she was going to die. In fact, she looked like she'd done 3 miles and somehow skipped the other 20 (I am in no way suggesting she cheated! She just looked comfortable, which was not what I was expecting at all). She even met us in the pub afterwards and wasn't that bothered about finding food or collapsing in a heap. I was in utter awe. She made it look fun. 

The atmosphere of the London Marathon was what really sucked me in. To have so many thousands of people in one spot for one shared goal was hugely emotional. The sun was out, the crowd were cheerful, we were all there to egg on a dedicated, slightly deranged loved one. I do love a bit of community spirit and the London Marathon has bucketloads. As disorganised spectators, we'd plonked ourselves, picnic-free, at the nearest viewing point to London Bridge Station. It wasn't a bad spot, but it would have been better with fluids and snacks - what isn't? We watched the elites race past, then wheelchair athletes, blind elite runners, then came the speedy club runners. The admiration I felt for these people is indescribable: they hadn't just covered a massive distance, they'd done it fast. We were initially reserved, but our support grew to a frenzy. We cheered extra loud for the occasional female keeping pace with the lanky legged men, in, have I used the word awe too much? It's the only one that fits. Once the civilians started pouring past, the colour of the runners changed: the healthy, athletic glow dipped to faded corned beef or plain grey. These guys really needed our support. Some runners really did not look well, which made Rachel's cheery grin even more surprising. She was a little way behind the corned beef crew, so we passed the time egging on those runners in between. We yelled out people's names, cheered, high fived, waved, yelped, laughed. We got runner blindness and worried we'd not spot Rachel, and we really did nearly miss her, but, somehow, there she was. We bellowed her name and got a smile and a wave... and I got the bug. 

I entered the ballot the next morning. Fresh out of the shower, my make-up laid out in front of me to get ready for work, I brushed the blusher aside to fill in the application form. Then I panicked a bit. A teeny tiny surge of nerves went through me, so I had to hold off with the eye liner until my hands had steadied, then I decided I'd go for a charity place too. Just to make sure it happened. I was fairly certain that my previous fundraising successes (I'd raised over £3000 for CRUK from two 5ks and a 10k) and my personal story would give me a decent chance at securing a place with CRUK. I didn't consider another charity. I just knew that place was mine. And it was. When I finally heard I'd been offered a Golden Bond place I cried. In a good way. And then I was bloody petrified. I had just taken on something immense. I had to raise £2000 AND run 26.2 miles. What kind of moron was I?!

I can't say what scared me the most. Both are monumental tasks and I had to do them both at the same time. I decided to prioritise. I guess I was most scared of not doing the running properly, so I wanted the fundraising out of the way so I could focus fully on my training without any pressure or panic. I set up my donations page immediately and posted it on Facebook. I got a few donations just for getting a place, which really gave me a boost. People are nice, people are prepared to give, maybe £2000 wasn't impossible after all. 

Having seen Rachel do it all before, I was able to steal a lot of her ideas! She was fantastic in sharing her ideas and resources. I owe her so much. She'd held a brilliant quiz which everyone had had so much fun at and passed on the questions to me. I felt I ought to change them a little, but at least I wasn't totally in the dark and starting from scratch. I think I would have been so bewildered had I had to do it without her or the charity's support. Having seen her success showed me it was possible. She suggested I contact local companies for raffle prizes and I asked my college to help out. I held a quiz in the college restaurant and staff came along for a three course meal, raffle and quiz. One lady I'd never met even came on her own as she thought it was such a good cause. I almost cried in her face, I was so touched. I'd been so anxious about the evening, but it was ace. As it was December, everyone treated it like their Christmas do and we all had an absolute ball. I've even been asked to arrange another. 

If you have a lot of money to raise, planning an event is a brilliant way to go about things. People feel more involved, they feel like they're getting something for their money and they're far more generous when they feel part of something. I actually arranged two quizzes - one for work, one for civilians - as they were very lucrative. I raised over £460 for the first and about £300 for the second. Having banked that much and having received a few random donations, I was already halfway to my target and it set my mind at rest. I had plans for yet another quiz once the marathon was over just in case I didn't reach my target, but I no longer had to panic that it was beyond me. 

It does seem like a lot of work before you get started, but local venues have quiet nights they are happy to have some unexpected custom on. Some do have a minimum spend, but many can be bartered down - it is all for charity, after all. CRUK provided balloons, banners and collection pots and I bought some sparkly confetti and sweets for the tables - the night itself was very little hassle at all, aside from my own nerves. Contacting local businesses was more hit and miss, but I went to my hairdresser and they provided a free cut, my riding stable provided a voucher, I got some cinema tickets and a few other bits and pieces. I was extremely lucky that a friend who runs offered use of her apartment in Spain as a prize, although people were just as happy to part with their cash for the raffle that did not have this as a prize. I also had a colleague do a bake sale for me, set up a swear box system with my students and shared with this with other teachers (this raised £200 alone, although much of that was generosity and not profanity) and I shook a bucket outside Arsenal's stadium, but that raised £2.20. Rachel packed bags in Sainsbury's. There are so many things you can do.

I have heard a lot of runners complain about the charity element of London, but I don't think I could have managed it without. Charities provide you with support - both practically and mentally - to get through. Rachel had ran for Oxfam and had been supported by them tremendously through the whole process. CRUK did similar. They gave fundraising tips and put us all in touch with a great running coach who provided training plans and a training day for CRUK's runners. I signed up for absolutely all of it. I had regular calls from CRUK to see how my training and fundraising were going. One fortuitously timed call came right after my first quiz and I was buzzing, it was so lovely to share my achievement with someone who valued it as much as I did. 

Despite, or perhaps because of, my initial fears, I actually raised £3000 from personal donations. The events were superfluous, but once I hit my target I didn't want to stop, I wanted to get as much for CRUK as I could. Believing in your cause helps so much. Firstly, you have to believe in what you're doing to develop the thick skin you'll need. You will be pestering and harassing your friends and family to give you money. That's quite an annoying thing to do and you will piss people off. You have to think it's worth it or you'll find excuses and chicken out. Being half-hearted is not an option. Consider yourself a representative for the charity and brand yourself. I changed my Facebook and Twitter pictures to things linked to CRUK. I posted my donations page link everywhere I could justify it. I put it in my personal and work email signatures and on every special occasion (Mum's birthday, Christmas, her anniversary, Mothers' Day) I shared the link. For every race I completed or every ridiculous or notable training run (not every training run - there were 3 or 4 a week, even I considered that overkill!) that link accompanied it. Every time I bought a new pair of trainers or carb-loaded a particularly delicious meal, photos with that link were shared around. People will relate to your fundraising journey in a variety of ways. Be serious, be emotional, be self-deprecating, be funny - be you. That is who they are supporting. Be honest, say why you want them to give and people will give if they can. 

The running itself completely took over and changed my life. I committed whole-heartedly. You do not need to do this as much as I did, but I was immensely daunted by the task and wanted to do it properly. Runners say you must respect the distance and I heeded this. I respected and feared it. I took it very seriously because it scared me and I wanted to do as much right to give myself the best chance as possible. I had to run 26.2 miles. My brain couldn't even compute that when I signed up. I was going to be running for around 4 hours! I've never done one single thing for that period of time in my life: I even need breaks from sleep! When I created a Facebook invite for the day of the race and realised I'd be starting at 10am and not finishing until around 2pm, the scale of my task hit me. I would not only be running for four hours, I would not be eating for four hours too. I don't think I've ever been conscious and gone without a meal for that long in my entire life. Now I was really scared. 

I read up on runners' nutrition and changed my diet, I spent a fortune on trainers, compression socks, gels and race entry frees (had I taken a more casual approach, I probably could have found the £2000 I needed to raise in the cost of my many panic buys). I stuck to my running plan as rigidly as I could and informed my very understanding friends I would only be able to see them once a week, unless they wanted to exercise with me. Some did. I even had one friend ride his bike, a la Rocky, alongside me on a 16.5 mile training run. I was certainly not going to be boozing myself unconscious as I had once done - my athletic metabolism punished severely for trying this once and there really was no way I putting myself through that again. 

By April, I had run 26.2 miles and raised over £3000. The combination of running and fundraising made it so much more than I expect any other race to ever be. I love running and I will run as much as I can for as long as my legs and lifestyle will let me, but nothing will match that. I loved doing the marathon and I especially loved the training. Week after week there was a sense of achievement at my own improvement that I hadn't felt since I was in school. When you become an adult, it's very rare to dedicate so much time to getting better at something and that was such a thrill. I signed up for a half marathon and a 20 mile race as part of my training and smashed them both. When I finished that 20 mile race in under 3 hours I knew I'd do the marathon in my dream sub-4 hour time. It was in the bag before I had even started. As I told a friend's sceptical boyfriend, the only thing that would stop me running would be my legs falling off. The confidence and happiness that spread through me then was unmatched by anything else in my life. I knew I would do it. That is exactly the mindset you need to run a marathon. 

But on top of that, my friends and family had supported me massively to do something amazing. We'd done so much good as a team - and I consider it a team effort, I could not have achieved all that alone - and I'd steered it. I got such a kick from knowing that I'd got everyone together to make that happen: I'd banked so much money for CRUK I was a hero. God, I was probably a dreadful person to be around then, but I was so happy. Absolutely everything I was doing was positve. I'd cut back on boozing, I'd accidentally stopped smoking, I was eating about four times as much as I'd normally eat and was still thinner than I'd been since I was 13, I was in possession of an incredibly capable and strong body and I was helping fight cancer. I was practically Batman!

So, to all those people who doubt they can run for charity or all those people who moan that they shouldn't have to: do it. There is no better feeling in the world. I'd have been thrilled to have achieved my time in the marathon without the fundraising, but the extra sense of achievement, to know all your friends and family believe in you and believe in your charity, to know that you have played a very real part in helping your charity achieve its goal, that is an indescribable and unparalleled feeling. I would never have believed that losing my mum, something drenched in chaos and sadness could lead to such tremendous fulfilment, but it did. It truly is the best thing I have ever done.

Zoe has her own blog - Cherry Blossom and Sake - which you can read at zoe1977.blogspot.co.uk


 
 

 
 
 



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Tuesday, 14 October 2014

CRUK Cancer Campaigns Ambassador Showcase - Jules Rattray

I talk about being inspired by my fellow CRUK Ambassadors a lot on this blog and I'm going to talk about it even more today! Without a doubt the best part of being a volunteer is getting to know the others - working alongside them is one of my favourite things in the world. I am definitely the least amazing of the group by far! 

Today I'm going to showcase one of the most inspirational people I've had the pleasure of meeting - Jules Rattray. It's a special day for her today as it's exactly 4 years since her last chemo treatment. Jules is friendly, intelligent and incredibly brave. She is a very gentle soul and also highly intelligent - so much so that I don't hold the fact that she's a Man Utd fan against get :) She is a wonderful asset to CRUK and I'm truly honoured that she has allowed me to share her story with you guys today. Jules, I find you incredible and wish you many many many happy and healthy years ahead of you filled with lots of love, fun and success! 


What made you decide to volunteer for CRUK?

After having finished my chemotherapy treatment and finding I was in remission I really felt I wanted to do something to help people in the future. I Knew about CRUK because of finding info from them during initial diagnosis. However after being so unwell and having to stay in so much to keep away from infection, I had become quite anxious about being out and about, so I just volunteered in my local CRUK shop for 4 hours twice a week to get out. While I was there I learnt more about what the charity does and when I came across the Ambassador role, I realised it was my opportunity to make my experience into a positive one and contribute to a future free from cancer.


*What sort of things do you do for the charity?

I have done some fundraising in the past at various sporting events, I have also had some newspaper articles to advertise race for life done. But most of my effort for CRUK goes into campaigning as an Ambassador for the charity. I lobby my MP on the policy issues that matter most for CRUK. I have been to two parliamentary lobby days, the first was for the standardized packs campaign and the second as to introduce MPs to our 2015 general election calls. Most recently I spoke to politicians and scientists at the Beatson Institution for Cancer Research about my personal experience with cancer and why I decided to become an ambassador.


*What are your favourite aspects of volunteering for the charity?

I find it incredibly rewarding because without Cancer Research UK I wouldn’t be alive today, I owe them so much so it has been great to be able to contribute even in a small way to the work that they do. I also find that everyone I have come into contact with at CRUK are incredibly kind and caring people who really are dedicated to a future where al cancers are cured.


*Do you have any future volunteering plans?

I plan to continue the ambassador role indefinitely, I also volunteer as a Samaritan once a week.


*What advice would you give anyone considering volunteering for CRUK?

I would tell them the ambassador role can be very flexible and with many of the actions you can give as much or as little time to them. You will feel a great sense of achievement at the parliamentary days when the whole team gets together. And you will meet many very inspiring people along the way, all working towards the same goal. You can get involved in other ways to, there is plenty fundraising to be done and volunteering in one of the CRUK shops is a great way to get out socialising and meeting new people all whilst helping to beat cancer!​

Jules made a very important speech recently and I wanted to share 2 paragraphs of it for you as I found them really powerful;

I think every ambassador has a defining moment in their journey through cancer, I thought I might share mine with you. It was during a phone call I had with my DadI was particularly anxious about the mid-way scan I was about to have. I said to my Dad, ‘well what if it’s not working? What if I am still dying?’ To which he replied without even needing to think ‘I won’t let you die, you are my daughter and I will never let that happen to you’. I told him ok and that I loved him and then hung up the phone. I told him ok, because that is what he needed to hear. I couldn’t tell him what I really felt because it would break his heart – It was that day, that I realised no matter how much he loved me, my Dad couldn’t protect me anymore, I was completely alone.

 

I am standing here today as an ambassador for Cancer Research UK because I don’t want to find myself, years down the line and all I can say to a loved one is I won’t let that happen to you. I am standing here now because I do love my Family and friends very dearly but I recognise that no amount of Love alone can stop cancer. We have to be proactive, the only way that we can protect our loved ones from cancer is through Research and clinical trials, through raising awareness and through Early Diagnosis.

It’s a long road ahead, but if we work together, Wewill beat cancer sooner.

Jules has her very own blog which is a really interesting read so please do click the link and have a look at her writing. http://newbeginning3today.blogspot.co.uk/?m=1

If you're interested in becoming part of the CRUK volunteering family and working alongside people like Jules please take a look at the link to find a role that will suit you! http://www.cancerresearchuk.org/support-us/volunteer

xxx